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Learn more about the resource available for children with ulcerative colitis. Learn what support groups and events are available and how to get involved with the Crohn's & Colitis Foundation of America, including the benefits of being involved.

Summary points 

  • Although a family’s most valuable source of information and support is their health care team, many other resources are available.

  • The Crohn’s and Colitis Foundation of America (CCFA) is a non-profit organization dedicated to finding a cure for IBD. Events, such as the Take Steps Walk, help increase awareness, and raise funds for research and support for patients. By sharing experiences, participating families feel less isolated. The foundation offers a variety of other resources for families with IBD, including educational literature (even a comic book), a one-on-one connection program, camps, and youth programs for kids with IBD.

  • Through support groups, families can find opportunities to speak with others about their concerns, obtain information, and learn about resources. For many patients and families, communication is the key to dealing with IBD. Consider joining a support group in your area.

  • Education is empowerment. Being better informed allows kids and teen with IBD to feel more in control.

  • There are a lot of places to learn more about your IBD:

    • Contact your local Crohn’s and Colitis Foundation of America (CCFA) office to receive updates on educational offerings in your area, or visit them on the web at http://www.ccfa.org
    • The North American Society of Pediatric Gastroenterology, Hepatology, and Nutrition provides educational materials for families at http://www.naspghan.org