Cardiomyopathy Program | Helpful Links

Please note that neither Boston Children's Hospital nor the Cardiomyopathy Program at Boston Children's unreservedly endorses all of the information found at the sites listed below. These links are provided as a resource.

Helpful links for parents and families

• Children's Cardiomyopathy Foundation
• Hypertrophic Cardiomyopathy Association
• MUMS National Parent-to-Parent Network
• The Children’s Heart Foundation
• National Institute of Rare Disorders: Information on Pediatric Cardiomyopathy

Helpful links for teens

• Beyond Heather's Heart
• Matters of the Heart: Megan's Story

Helpful links for younger children

• Camp Odayin for Kids with Heart Disease
• KidzWorld: The Lowdown on Heart Disease