As kids start spending time outdoors, many parents are concerned about disease, the most common tick-borne disease in the U.S.
In the U.S., Lyme disease is most common in the Northeast and Mid-Atlantic states and the northern Midwest. Although Lyme disease occurs throughout the year, we see the majority of cases between June and October.
When Lyme disease is discovered and treated early, the vast majority of children make a full recovery. But left untreated, the bacteria that cause Lyme can attack many systems of your child's body, including the skin, heart, nerves, and joints.
In this episode of Parentcast, host Dr. Jennifer Arnold speaks with Boston Children’s pediatric neurologist Dr. Molly Wilson-Murphy about how parents can protect their kids from ticks and Lyme disease while safely enjoying the outdoors.
Lyme disease is caused by a bite from one of several types of tiny black-legged ticks, often found on white-footed mice and white-tailed deer that most commonly live in woods and high grass. The bite injects a bacterium into the skin. Lyme disease cannot be spread from person to person.
Most children who develop Lyme disease do not recall having been bitten by a tick. Symptoms can appear a few days to many months after the bite, and can include:
Children with a bulls-eye rash (also called an erythema migrans lesion) may also have systemic symptoms such as fever, fatigue, and joint aches. The rash may not have a classic bull-eye appearance, especially on people with darkly pigmented skin, and can be mistaken for cellulitis, ringworm, or other skin conditions. The rash may not be visible, if the tick bite occurred in a more hidden site such as on the head/under hair.
The most common late stage symptom of Lyme disease is arthritis, particularly in the large joints and especially the knee. Typically, the joints will be more swollen and tender than painful, and anti-inflammatory medicine can help.
Most tests for Lyme disease look for antibodies the body makes in response to infection. Since it takes time for the immune system to produce these antibodies, an early test may come back negative, but your child could still have Lyme disease. Also, if your child has had Lyme disease in the past, the test may remain positive.
While currently available tests work in most cases, a clinical evaluation should take into account exposure to ticks, as well as the timing and nature of symptoms in making a diagnosis of Lyme disease.
Research is underway to develop and improve methods for diagnosing Lyme disease. Learn more.
Lyme disease is most often treated with antibiotics such as doxycycline, amoxicillin, or cefuroxime for several weeks. Please complete the full course of antibiotics as prescribed, even if your child is feeling better, in order to kill all the bacteria.
If your child doesn't respond to oral antibiotics, or if the Lyme disease is affecting the central nervous system, antibiotics may need to be given intravenously (through an IV). This usually doesn’t require your child to be hospitalized. In many cases, a nurse can come to your home to administer the IV or teach you or another family member how to do it.
Anti-inflammatory medicine may be prescribed for children who are experiencing pain from arthritis.
Unfortunately, there is currently no vaccine for Lyme disease. But you can avoid Lyme disease by avoiding tick bites, checking for ticks, and removing ticks promptly, before they become lodged in the skin. Some tips:
Don't panic. First Lyme disease is spread by the black-legged tick, not by the larger and more-common dog tick. The risk of developing Lyme disease after a black-legged tick bite is low, especially if the tick has been attached for a short time.
If you find a tick on your child, remove it using a fine-tipped pair of tweezers. Grasp the body of the tick and pull in an upward motion until the tick comes out. Do not squeeze or twist the tick’s body. Take note of the tick’s size and color, and how long you think it has been attached to your child.
If your child has been bitten by a black-legged tick that has been attached for more than 24 hours and you are in a Lyme disease endemic area, consult with your pediatrician. In some cases, your child may be prescribed antibiotics to prevent Lyme disease from developing.
If Lyme disease is caught and treated early, most children will make a full recovery. Some children with Lyme disease go on to experience what's called a “post-infectious syndrome” with symptoms that may include feeling fatigue, joint aches and pains, headaches, difficulty sleeping, and problems concentrating. Since the infection itself is gone by this time, doctors generally don't prescribe antibiotics. Each child is different, but it's not uncommon for symptoms of post-infectious syndrome to linger for months, or even years, and they can be made worse by stress or other illness. But most children do make a full recovery.
The Division of Infectious Diseases at Boston Children's provides comprehensive care for children and adolescents with Lyme disease and other infections. Our services include consultation, evaluation, treatment, and management of long-term complications of Lyme disease.
