What is the GlomCare Clinic?

The GlomCare Clinic at Boston Children’s Hospital is dedicated to supporting children and adolescents with glomerular disease that has been unresponsive to standard treatment or has developed a complicated disease course.

Glomerular diseases affect the filtering units of your kidney, the glomeruli. The purpose of the GlomCare Clinic is to provide exceptional, family-centered care for glomerular disease patients, in a compassionate environment. By delivering new and precise diagnoses and personalized treatments, we aim to improve outcomes and quality of life.

In the last decade, there has been an advent of new treatment options available for these conditions. Our goal is to provide guidance around use of these newer therapies, if indicated.

The clinic offers a unique approach in the following ways:

  • Physicians who have experience treating patients with complex glomerular disease
  • Access to clinical trials and research studies
  • Access to genetic testing (the Boston Children’s Kidney Genetics Clinic) if indicated
  • Multidisciplinary approach that includes pathology, rheumatology, and immunology

We treat children and young adults with any form of glomerular disease, including but not limited to:

What to expect at your visit

In collaboration with your child’s primary care provider or other referring physician, we will schedule your first appointment. Prior to the visit, we will review all their records, including renal biopsy results if available. At the visit, members of our multidisciplinary team will meet with your family and discuss recommendations. Follow up will be determined based on your child’s unique situation, and we will go over any options to enroll in research studies.

Research and innovation

The following research is underway, with treatment options available to patients in the GlomCare Clinic:

  • CAR-T trials for SLE and lupus nephritis
  • Potential C3G and IgA nephropathy trials
  • Get Plugged In study: Multicenter prospective glomerular study
  • BIGKiDS study: A biobank to help discover the genomic basis of nephrotic syndrome and proteinuric kidney disease
  • Ongoing prospective studies