PUBLICATIONS

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  1. Association of Damaging Variants in Genes With Increased Cancer Risk Among Patients With Congenital Heart Disease. JAMA Cardiol. 2021 Apr 01; 6(4):457-462. View abstract
  2. Differences in perceptions of transition readiness between parents and teens with congenital heart disease: do parents and teens agree? Cardiol Young. 2021 Jan 11; 1-8. View abstract
  3. Difference in the prevalence of intracardiac thrombus on the first presentation of atrial fibrillation versus flutter in the pediatric and congenital heart disease population. J Cardiovasc Electrophysiol. 2020 12; 31(12):3243-3250. View abstract
  4. Resynchronizing Right and Left Ventricles With Right Bundle Branch Block in the Congenital Heart Disease Population. JACC Clin Electrophysiol. 2020 12; 6(14):1762-1772. View abstract
  5. Patient Sharing and Health Care Utilization Among Young Adults With Congenital Heart Disease. Med Care Res Rev. 2020 Jul 29; 1077558720945925. View abstract
  6. Interobserver agreement of the anatomic and physiological classification system for adult congenital heart disease. Am Heart J. 2020 11; 229:92-99. View abstract
  7. Characteristics of Adults With Congenital Heart Defects in the United States. J Am Coll Cardiol. 2020 07 14; 76(2):175-182. View abstract
  8. Adult Congenital Heart Disease-Preparing for the Changing Work Force Demand. Cardiol Clin. 2020 Aug; 38(3):283-294. View abstract
  9. Adverse Pregnancy Conditions Among Privately Insured Women With and Without Congenital Heart Defects. Circ Cardiovasc Qual Outcomes. 2020 06; 13(6):e006311. View abstract
  10. Transition Readiness in Teens and Young Adults with Congenital Heart Disease: Can We Make a Difference? J Pediatr. 2020 06; 221:201-206.e1. View abstract
  11. Coronavirus Disease 2019 (COVID-19) Pandemic Implications in Pediatric and Adult Congenital Heart Disease. J Am Heart Assoc. 2020 06 16; 9(12):e017224. View abstract
  12. Echocardiography-guided determination of reliable atrial pacing in a patient with congenital heart disease. HeartRhythm Case Rep. 2020 Jul; 6(7):445-447. View abstract
  13. Assessing Pregnancy, Gestational Complications, and Co-morbidities in Women With Congenital Heart Defects (Data from ICD-9-CM Codes in 3 US Surveillance Sites). Am J Cardiol. 2020 03 01; 125(5):812-819. View abstract
  14. Cancer Risk in Congenital Heart Disease-What Is the Evidence? Can J Cardiol. 2019 Dec; 35(12):1750-1761. View abstract
  15. Receipt of American Heart Association-Recommended Preconception Health Care Among Privately Insured Women With Congenital Heart Defects, 2007-2013. J Am Heart Assoc. 2019 09 17; 8(18):e013608. View abstract
  16. Increasing Evidence for and a Word of Caution About an Association Between Cancer and Congenital Heart Disease. JAMA Netw Open. 2019 07 03; 2(7):e196756. View abstract
  17. Surveillance of Congenital Heart Defects among Adolescents at Three U.S. Sites. Am J Cardiol. 2019 07 01; 124(1):137-143. View abstract
  18. 2018 AHA/ACC Guideline for the Management of Adults With Congenital Heart Disease: Executive Summary: A Report of the American College of Cardiology/American Heart Association Task Force on Clinical Practice Guidelines. Circulation. 2019 04 02; 139(14):e637-e697. View abstract
  19. 2018 AHA/ACC Guideline for the Management of Adults With Congenital Heart Disease: A Report of the American College of Cardiology/American Heart Association Task Force on Clinical Practice Guidelines. Circulation. 2019 04 02; 139(14):e698-e800. View abstract
  20. Population-based surveillance of congenital heart defects among adolescents and adults: surveillance methodology. Birth Defects Res. 2018 11 15; 110(19):1395-1403. View abstract
  21. Frontiers in Fontan failure: Innovation and improving outcomes: A conference summary. Congenit Heart Dis. 2019 Mar; 14(2):128-137. View abstract
  22. A National Population-based Study of Adults With Coronary Artery Disease and Coarctation of the Aorta. Am J Cardiol. 2018 12 15; 122(12):2120-2124. View abstract
  23. Epidemiology of ACHD: What Has Changed and What is Changing? Prog Cardiovasc Dis. 2018 Sep - Oct; 61(3-4):275-281. View abstract
  24. 2018 AHA/ACC Guideline for the Management of Adults With Congenital Heart Disease: Executive Summary: A Report of the American College of Cardiology/American Heart Association Task Force on Clinical Practice Guidelines. J Am Coll Cardiol. 2019 04 02; 73(12):1494-1563. View abstract
  25. 2018 AHA/ACC Guideline for the Management of Adults With Congenital Heart Disease: A Report of the American College of Cardiology/American Heart Association Task Force on Clinical Practice Guidelines. J Am Coll Cardiol. 2019 04 02; 73(12):e81-e192. View abstract
  26. A Pilot Study of Inspiratory Muscle Training to Improve Exercise Capacity in Patients with Fontan Physiology. Semin Thorac Cardiovasc Surg. 2018 Winter; 30(4):462-469. View abstract
  27. Stroke in Adults With Coarctation of the Aorta: A National Population-Based Study. J Am Heart Assoc. 2018 06 01; 7(11). View abstract
  28. Transition Education: Formative Steps, in Need of Direction. J Am Coll Cardiol. 2018 04 24; 71(16):1778-1780. View abstract
  29. College students with congenital heart disease: A critical time for transition. J Am Coll Health. 2018 May-Jun; 66(4):324-328. View abstract
  30. Association of Albuminuria With Major Adverse Outcomes in Adults With Congenital Heart Disease: Results From the Boston Adult Congenital Heart Biobank. JAMA Cardiol. 2018 04 01; 3(4):308-316. View abstract
  31. Outcomes of Patients With Hypoplastic Left Heart Syndrome Reaching Adulthood After Fontan Palliation: Multicenter Study. Circulation. 2018 02 27; 137(9):978-981. View abstract
  32. Fontan-Associated Liver Disease: Proceedings from the American College of Cardiology Stakeholders Meeting, October 1 to 2, 2015, Washington DC. J Am Coll Cardiol. 2017 12 26; 70(25):3173-3194. View abstract
  33. Exposure to Low-Dose Ionizing Radiation From Cardiac Procedures and Malignancy Risk in Adults With Congenital Heart Disease. Circulation. 2018 03 27; 137(13):1334-1345. View abstract
  34. Development of Quality Metrics in Ambulatory Pediatric Cardiology. J Am Coll Cardiol. 2017 Feb 07; 69(5):541-555. View abstract
  35. Advancing the Measurement of Care Coordination in Pediatric Behavioral Health. J Dev Behav Pediatr. 2016 10; 37(8):674-84. View abstract
  36. Prevalence of Cancer in Adults With Congenital Heart Disease Compared With the General Population. Am J Cardiol. 2016 Dec 01; 118(11):1742-1750. View abstract
  37. Emerging Research Directions in Adult Congenital Heart Disease: A Report From an NHLBI/ACHA Working Group. J Am Coll Cardiol. 2016 Apr 26; 67(16):1956-64. View abstract
  38. Exposure to Low-Dose Ionizing Radiation From Cardiac Procedures in Patients With Congenital Heart Disease: 15-Year Data From a Population-Based Longitudinal Cohort. Circulation. 2016 Jan 05; 133(1):12-20. View abstract
  39. Hybrid Approach for Off-Pump Pulmonary Valve Replacement in Patients With a Dilated Right Ventricular Outflow Tract. Ann Thorac Surg. 2015 Nov; 100(5):e99-101. View abstract
  40. Evaluation of Health Care Quality in Adults with Congenital Heart Disease. Cardiol Clin. 2015 Nov; 33(4):635-41, ix-x. View abstract
  41. Feasibility of Using Electronic Medical Record Data for Tracking Quality Indicators in Adults with Congenital Heart Disease. Congenit Heart Dis. 2015 Nov-Dec; 10(6):E268-77. View abstract
  42. Survival of adults with ASD2: a call for a longitudinal clinical registry. Eur Heart J. 2015 Aug 14; 36(31):2036-2038. View abstract
  43. Electronic medical record integration with a database for adult congenital heart disease: Early experience and progress in automating multicenter data collection. Int J Cardiol. 2015 Oct 01; 196:178-82. View abstract
  44. Task Force 6: Pediatric Cardiology Fellowship Training in Adult Congenital Heart Disease. J Am Coll Cardiol. 2015 Aug 11; 66(6):723-31. View abstract
  45. Task Force 6: Pediatric Cardiology Fellowship Training in Adult Congenital Heart Disease. SPCTPD/ACC/AAP/AHA. Circulation. 2015 Aug 11; 132(6):e91-8. View abstract
  46. 2015 SPCTPD/ACC/AAP/AHA Training Guidelines for Pediatric Cardiology Fellowship Programs (Revision of the 2005 Training Guidelines for Pediatric Cardiology Fellowship Programs). J Am Coll Cardiol. 2015 Mar 13. View abstract
  47. Current and future status of adult congenital training in North America. Am J Cardiol. 2015 Apr 15; 115(8):1151-3. View abstract
  48. Clinicians' perspectives on patient satisfaction in adult congenital heart disease clinics--a dimension of health care quality whose time has come. Congenit Heart Dis. 2015 Mar-Apr; 10(2):128-36. View abstract
  49. Transition in congenital heart disease: it takes a village. Heart. 2014 Jul; 100(14):1075-6. View abstract
  50. Clinical research priorities in adult congenital heart disease. Int J Cardiol. 2014 Feb 15; 171(3):351-60. View abstract
  51. Heart failure in pregnant women with cardiac disease: data from the ROPAC. Heart. 2014 Feb; 100(3):231-8. View abstract
  52. Building quality indicators to improve care for adults with congenital heart disease. J Am Coll Cardiol. 2013 Dec 10; 62(23):2244-53. View abstract
  53. Public health science agenda for congenital heart defects: report from a Centers for Disease Control and Prevention experts meeting. J Am Heart Assoc. 2013 Aug 28; 2(5):e000256. View abstract
  54. Improving heart disease knowledge and research participation in adults with congenital heart disease (the Health, Education and Access Research Trial: HEART-ACHD). Int J Cardiol. 2013 Oct 09; 168(4):3236-40. View abstract
  55. Prevalence and predictors of gaps in care among adult congenital heart disease patients: HEART-ACHD (The Health, Education, and Access Research Trial). J Am Coll Cardiol. 2013 May 28; 61(21):2180-4. View abstract
  56. Left and right ventricular diastolic function in adults with surgically repaired tetralogy of Fallot: a multi-institutional study. Can J Cardiol. 2013 Jul; 29(7):866-72. View abstract
  57. Hospitalizations and mortality in the United States for adults with Down syndrome and congenital heart disease. Am J Cardiol. 2013 Apr 01; 111(7):1046-51. View abstract
  58. Aortic root dilatation in adults with surgically repaired tetralogy of fallot: a multicenter cross-sectional study. Circulation. 2013 Jan 15; 127(2):172-9. View abstract
  59. Best practices in managing transition to adulthood for adolescents with congenital heart disease: the transition process and medical and psychosocial issues: a scientific statement from the American Heart Association. Circulation. 2011 Apr 05; 123(13):1454-85. View abstract
  60. Prevalence of left ventricular systolic dysfunction in adults with repaired tetralogy of fallot. Am J Cardiol. 2011 Apr 15; 107(8):1215-20. View abstract
  61. From numbers to guidelines. Prog Cardiovasc Dis. 2011 Jan-Feb; 53(4):239-46. View abstract
  62. Arrhythmia burden in adults with surgically repaired tetralogy of Fallot: a multi-institutional study. Circulation. 2010 Aug 31; 122(9):868-75. View abstract
  63. The CALF (Congenital Heart Disease in Adults Lower Extremity Systemic Venous Health in Fontan Patients) study. J Am Coll Cardiol. 2010 Jul 06; 56(2):144-50. View abstract
  64. Echo rounds: intramural left coronary artery. Anesth Analg. 2010 Aug; 111(2):354-7. View abstract
  65. Electrocardiogram screening of infants for long QT syndrome: survey of pediatric cardiologists in North America. J Electrocardiol. 2010 Jan-Feb; 43(1):4-7. View abstract
  66. State of the science: promoting self-care in persons with heart failure: a scientific statement from the American Heart Association. Circulation. 2009 Sep 22; 120(12):1141-63. View abstract
  67. Distorted cardiac anatomy: the congenital (R)evolution. J Am Soc Echocardiogr. 2009 Feb; 22(2):141-4. View abstract
  68. An unusual presentation in a patient with Shone's anomaly. Anesth Analg. 2008 Dec; 107(6):1825-7. View abstract
  69. Repaired tetralogy of Fallot in the adult: monitoring and management. Heart. 2008 Dec; 94(12):1663-9. View abstract
  70. Missed diagnosis of critical congenital heart disease. Arch Pediatr Adolesc Med. 2008 Oct; 162(10):969-74. View abstract
  71. Multicenter research in adult congenital heart disease. Int J Cardiol. 2008 Sep 26; 129(2):155-9. View abstract
  72. Considerations of a one-and-one-half ventricle repair in a 47-year-old patient. Congenit Heart Dis. 2008 Jan-Feb; 3(1):69-72. View abstract
  73. Intraoperative pulmonary artery stenting: an alternative technique for the management of pulmonary artery stenosis. Ann Thorac Surg. 2007 Oct; 84(4):1338-41; discussion 1342. View abstract
  74. Ebstein's anomaly of the tricuspid valve. Curr Cardiol Rep. 2007 Jul; 9(4):336-42. View abstract
  75. Changes in hospitalization patterns among patients with congenital heart disease during the transition from adolescence to adulthood. J Am Coll Cardiol. 2007 Feb 27; 49(8):875-82. View abstract
  76. Current practice of exercise stress testing among pediatric cardiology and pulmonology centers in the United States. Pediatr Cardiol. 2006 Jan-Feb; 27(1):110-116. View abstract
  77. Variations in adult congenital heart disease training in adult and pediatric cardiology fellowship programs. J Am Coll Cardiol. 2005 Sep 06; 46(5):893-8. View abstract
  78. Frequency of aortic root dilation in children with a bicuspid aortic valve. Am J Cardiol. 2004 Nov 15; 94(10):1337-40. View abstract
  79. Altered cerebral dominance in atopy and in children of asthmatic mothers. Ann N Y Acad Sci. 1992 Apr 15; 650:25-9. View abstract