Ways to Help | Overview
There are different ways in which you can help us in our efforts to learn more about the genetics of the congenital myopathies.
Participating in Research
Volunteering for participation in research studies opens the possibility of obtaining new insights on these rare disorders. This may eventually lead to improved diagnostic tests and therapies for the congenital myopathies.
Giving to Support Research
Many people ask what they can do to hasten our work to determine a cause or find a cure. One important action you can take today is to make a gift to the Beggs Laboratory to support our research. Every gift, no matter the size, plays a vital role in bringing us one step closer to an answer. When you make a gift, you will receive a gift acknowledgement for tax purposes. Your gift is tax deductible to the extent provided by law.
For more information about giving, please contact:
Children's Hospital Trust
1 Autumn Street, #731
Boston, MA 02215-5301
Ph: 617-355-6890
Heightening Awareness
You can also help by raising public and legislative awareness of the congenital myopathies. The more people learn about this rare group of diseases, the greater the possibility that sufficient funds will be raised for research and for assistance to individuals with congenital myopathies. We know of many individuals and diagnosis-specific groups who have made a difference by building awareness of the condition in their family. Here are some of the most successful approaches:
This page was last updated October 21, 2020.