Information for Families

BioBank: Questions and Answers

The purpose of this comic book is to explain in simple terms how biobanks work, how and why samples and information are collected, and how these are used and shared.

Biobank comic book cover

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Sophie’s Science Project: What is Medical Research

This comic book was developed with the goal of educating children about medical research. Please feel free to download this comic book and share it with children.

Sophie's comic book cover

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National Institutes of Health website for parents on medical research studies for children

The purpose of the website is to provide information for families that includes the following topics:

  • Why is research important, how is it different, safety and protections, are there benefits, your right to say no

  • Information on the research team, what you might need to ask, and what role kids play in participating

  • Information on how studies affect the family and what kids think, what happens if you leave a study or what happens when it ends

  • Know what rights you have, where to find information, and terms that you may hear in a study

Children's Hospital Clinical Research Bill of Rights

Children's Hospital is committed to respecting and protecting the rights of its patients and families. We strive to provide care that is sensitive to cultural, racial, religious and other differences. This bill of rights provides information about our commitment to you, and your responsibilities as a member of your child's health care team.

Clinical Research Bill of Rights


Feedback from Participants

We welcome your feedback and suggestions whether you have had a good experience with research or would like to see some improvements. Click below to send us an email. Your submission will remain anonymous.