We recommend a variety of internal and external resources for patients in the Aerodigestive Center and their families:
Informational resources
Feeding Matters
An organization devoted to promoting awareness of pediatric feeding disorders
Feeding Tube Awareness Foundation
A support organization that also raises awareness of tube feeding
Family TIES of Massachusetts
A support network for families of children with special needs
Family Resource Centers of Massachusetts
A statewide network of community-based providers offering multicultural parenting programs, support groups, early childhood services, information and referral resources and education for families
The Oley Foundation
An organization aimed at enriching the lives of those living with home intravenous nutrition and tube feeding through education, advocacy and networking.
The modified barium swallow study: What's it like?
This test can help clinicians determine whether a child is aspirating, or inhaling food or liquid into their lungs.
Financial resources
Catastrophic Illness Relief Fund for Children in Massachusetts
Provides financial assistance to qualified families caring for children with special health needs and disabilities.
First Hand Foundation
Provides funding for individual children with health-related needs when insurance and other financial resources have been exhausted
United Healthcare Children's Foundation
Helps families gain access to care through medical grants
Health Well's Pediatric Assistance Fund
Provides financial assistance to eligible families of critically ill children
Additional resources
The social worker on your child's care team can help if you need assistance in any of the following areas:
- resources for coping with chronic illness, managing pain, stress and anxiety, sibling support, or post-partum depression
- resources related to housing, legal matters, food, finances, respite, transition planning into adulthood, LGBTQ issues, or immigration
- resources for educational needs (including advocacy and assistance with IEP/504 plans and bullying)
For detailed information about visiting Boston Children's Hospital and other available resources, visit our Patient Resources page.