Dr. Harvey Levy Program for Phenylketonuria and Related Conditions

Family Resources

These organizations offer support, networking, and education for families with phenylketonuria (PKU) and related disorders. While we provide these links as a resource, please note that neither Boston Children's Hospital nor the Dr. Harvey Levy Program for Phenylketonuria and Related Conditions unreservedly endorses all of the information found at the sites listed below.

New England Connection for PKU and Allied Disorders Inc.
National PKU Alliance (NPKUA)
HCU Network America: Resources and information on HCU
MSUD Family Support Group
National Urea Cycle Disorders Foundation

Dr. Harvey Levy Program for Phenylketonuria and Related Conditions

Call 617-355-6394

Fax 617-730-0466

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Dr. Harvey Levy Program for Phenylketonuria and Related Conditions

Family Resources

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