Dr. Richard Goldstein is featured: How do I cope with the loss of my child?
Professional History
Dr. Richard Goldstein is a pediatric palliative care pediatrician dedicated to helping families cope with the sudden unexpected death of their child. In 2012, Dr. Goldstein co-founded the Robert’s Program on Sudden Unexpected Death in Pediatrics at Boston Children’s Hospital with Dr. Hannah Kinney, creating a diagnostic program that provides comprehensive attention and support to parents struggling to understand why their child has died and what it means for their family’s future health. He is a leader in research focused on factors underlying unexplained pediatric death and the strengths and challenges faced by grieving families. Dr. Goldstein is the Program Director of Robert’s Program and serves as the direct interface to families, providing expert clinical care and guidance throughout the process.
Publications
Respiratory Arrest in a Late Preterm Infant Presenting for a 2-Week Well-Visit. View Abstract
Bereaved Parents' Perceptions of the Doll Reenactment After Sudden Unexpected Infant Deaths. View Abstract
Dysregulation of platelet serotonin, 14-3-3, and GPIX in sudden infant death syndrome. View Abstract
Sudden Death in a Child With Ocular Lesions. View Abstract
Multiomic Analysis of Neuroinflammation and Occult Infection in Sudden Infant Death Syndrome. View Abstract
Seizures and Sudden Death Beyond SUDEP. View Abstract
Sudden Unexplained Death in Childhood: Current Understanding. View Abstract
The fundamental need for unifying phenotypes in sudden unexpected pediatric deaths. View Abstract
Altered 5-HT2A/C receptor binding in the medulla oblongata in the sudden infant death syndrome (SIDS): Part I. Tissue-based evidence for serotonin receptor signaling abnormalities in cardiorespiratory- and arousal-related circuits. View Abstract
Re: Technical Report for Updated 2022 Recommendations for Reducing Infant Deaths in the Sleep Environment. View Abstract
Copy Number Variation and Structural Genomic Findings in 116 Cases of Sudden Unexplained Death between 1 and 28 Months of Age. View Abstract
Only Halfway There with Sudden Infant Death Syndrome. View Abstract
Genetic Determinants of Sudden Unexpected Death in Pediatrics. View Abstract
Medullary Serotonergic Binding Deficits and Hippocampal Abnormalities in Sudden Infant Death Syndrome: One or Two Entities? View Abstract
Parents as Advocates for Pediatric Palliative Care. View Abstract
The parental role before and after SIDS. View Abstract
Genetic Factors Underlying Sudden Infant Death Syndrome. View Abstract
A de novo BRPF1 variant in a case of Sudden Unexplained Death in Childhood. View Abstract
The role of sodium channels in sudden unexpected death in pediatrics. View Abstract
Sudden Unexplained Infant Deaths and Day of Life 0. View Abstract
Inconsistent classification of unexplained sudden deaths in infants and children hinders surveillance, prevention and research: recommendations from The 3rd International Congress on Sudden Infant and Child Death. View Abstract
Maternal Smoking Before and During Pregnancy and the Risk of Sudden Unexpected Infant Death. View Abstract
Mutations in NRXN1 and NRXN2 in a patient with early-onset epileptic encephalopathy and respiratory depression. View Abstract
Pre-loss personal factors and prolonged grief disorder in bereaved mothers. View Abstract
The Grief of Mothers After the Sudden Unexpected Death of Their Infants. View Abstract
SCN1A variants associated with sudden infant death syndrome. View Abstract
A New Approach to the Investigation of Sudden Unexpected Death. View Abstract
High serum serotonin in sudden infant death syndrome. View Abstract