Treatments for Parry-Romberg Syndrome

Because Parry-Romberg syndrome may involve the lip, nose, mouth and ears, it can affect a child’s hearing, feeding, speech and dental functions. At Boston Children’s Hospital, our dedicated and knowledgeable team of specialists from several disciplines provides you and your child with the care and expertise necessary to treat this rare and complex condition.

Treatment typically involves surgery. The Cleft and Craniofacial Center at Boston Children’s is one of the largest and most experienced pediatric plastic and oral surgery centers anywhere in the world.

Learn more about our approach to craniofacial care.

Parry-Romberg Syndrome and Reconstructive Surgery

Our world-renowned surgeons at Boston Children’s hospital perform very precise, complex reconstructive surgeries to treat Parry-Romberg. These surgeries are diverse, but not curative. Our surgeons usually recommend postponing surgery until the condition has stopped getting worse, and has reached an inactive phase. This allows for the best treatment and reconstruction. The surgery (or surgeries) range across a large spectrum, but may include:

  • Moving soft tissue and fat from other parts of the body to areas of need
  • More extensive reconstruction for boney deformity using hardware or grafts

Our surgeons will discuss specific options with you and your child in order to personally tailor the treatment. Since every patient’s case is unique, the surgical approach may vary quite significantly to treat your child’s condition.

Make an Appointment

For an appointment with the Cleft and Craniofacial Center, more information or to obtain a second opinion for your child, please call us at 617-355-6309 or email

International Patients

For families residing outside of the United States, please call Boston Children's International Health Services at +01-617-355-5209.