Parkes Weber Syndrome

What is Parkes Weber syndrome (PWS)?

PWS is an exceptionally rare congenital (present at birth) vascular anomaly that results in a child having a large number of abnormal blood vessels. It’s similar to the more common Klippel-Trenaunay syndrome (KTS) and is treated in much the same way.

In contrast to children who have KTS, children with PWS have arteriovenous malformations (AVM) — abnormal connections between the arteries and veins in the affected limb that can cause heart failure.

There is no cure for Parkes Weber syndrome; the most effective way to manage the condition is to treat the symptoms it causes.

No single specialist can manage PWS and its associated problems, because different interventional techniques and surgical procedures are often needed. That's why the first step in managing PWS is to have your child evaluated by members of an experienced interdisciplinary vascular anomalies team.

Care for Parkes Weber syndrome

Because PWS is so rare, very few doctors have experience diagnosing and treating it. The Vascular Anomalies Center at Boston Children's has evaluated more children with PWS than any other hospital in the world. The VAC's more than 25 physicians — representing over 16 medical and surgical specialties — draw on those experiences to continually refine the therapies and achieve better long-term outcomes for children with PWS.