Paraganglioma/Pheochromocytoma | Diagnosis & Treatment

How are paraganglioma/pheochromocytoma diagnosed?

The first step in treating your child is forming an accurate and complete diagnosis. Your child’s physician may order a number of different tests including:

There may be other diagnostic tests that your doctor will discuss with you depending on your child's individual situation. After we complete all necessary tests, our experts meet to review and discuss what they have learned about your child's condition. Then, we will meet with you and your family to discuss the results and outline the best possible treatment options.

What are the treatment options for paraganglioma/pheochromocytoma?

Treatment for paraganglioma or pheochromocytoma will depend on the location and type of your child’s tumor. Your child's doctor may recommend surgery including a biopsy, laparoscopy or thoracoscopy. Sometimes before removing a pheochromocytoma, your child’s physician may prescribe medicine to control high blood pressure. There are also some newer agents that are being investigated to reduce the need for big surgeries for advanced paragangliomas.