Mitochondrial Program | Patient Resources

Our team in the Mitochondrial Program at Boston Children’s Hospital will talk with you about your child’s condition, discuss any questions you have and try to help you find the support you need. The following resources may also be helpful to you.


Please note that neither Boston Children’s Hospital nor the Mitochondrial Program at Boston Children’s unreservedly endorses all of the information found at the sites listed below. These links are provided solely as a resource.


  • The United Mitochondrial Disease Foundation offers support and education for families of children with mitochondrial disease and provides research grants.
  • MitoAction is an organization based in the Boston area whose purpose is to support and advocate for patients with mitochondrial disorders and their families.

Resources at Boston Children’s

Our For Patients and Families website offers information on the wide array of support services available to patients and their families, as well as the logistics of coming to the hospital.

Patient Story

A (newfound) appetite for lifeGwen Lorimier_mitochondrial disease

What would it be like to live your whole life, unable to eat food? Read about Gwen Lorimier, a patient who couldn’t eat until an intestinal transplant offered her a chance at a normal childhood.