Lymphatic Anomalies Registry | Resources for Patients and Families

Several organizations and groups exist that provide support for patients with lymphatic anomalies and their families, or conduct research on these conditions. Below is a list of some of those resources:

• Alfie Milne Trust
• American Society of Pediatric Hematology/Oncology Vascular Anomalies Special Interest Group
• CLOVES Syndrome Community
• CLOVES Foundation
• International Society for the Study of Vascular Anomalies
• Kennedy’s Cause
• Klippel Trenaunay Support Group
• Lymphangiomatosis and Gorham Disease Alliance (LGDA) in the United States and Europe
• Lymphatic Malformation Institute (LMI)
• Lymphatic Education & Research Network (LE&RN)
• National Organization of Vascular Anomalies (NOVA)