Lymphatic Anomalies Registry | Resources for Patients and Families
Several organizations and groups exist that provide support for patients with lymphatic anomalies and their families, or conduct research on these conditions. Below is a list of some of those resources:
- Alfie Milne Trust
- American Society of Pediatric Hematology/Oncology Vascular Anomalies Special Interest Group
- CLOVES Syndrome Community
- CLOVES Foundation
- International Society for the Study of Vascular Anomalies
- Kennedy’s Cause
- Klippel Trenaunay Support Group
- Lymphangiomatosis and Gorham Disease Alliance (LGDA) in the United States and Europe
- Lymphatic Malformation Institute (LMI)
- Lymphatic Education & Research Network (LE&RN)
- National Organization of Vascular Anomalies (NOVA)
