Epilepsy Genetics Program | Patient Resources
We understand that you may have many questions if your child has been diagnosed with an early-onset epilepsy. There are a number of support groups available for patients with epilepsy and their family members. The following websites provide additional information about specific epilepsy syndromes, genetic variants, services, and support:
Citizens United for Research in Epilepsy (CURE)
The Cute Syndrome Foundation (PCDH19 Epilepsy)
Epilepsy Foundation New England
Insieme per la Ricerca PCDH19
Please note that neither Boston Children’s Hospital nor the Epilepsy Genetics Program at Boston Children’s Hospital unreservedly endorses all of the information found at the sites listed above.
