Down Syndrome Program | Patient Resources

Time to Shine!

We invite all families to join us for our Virtual Costume Party on Oct. 31! Early Bird pricing for tickets is available now! It will feature a costume fashion show, dance breaks, prizes, and more!

Time to Shine will hold a virtual costume party on October 31st, 2019!

The Down Syndrome Program is proud to offer many opportunities outside of the clinic to help support development and learning, health and wellness, and community building. These programs inspire families to think positively and brightly about the future of their children.

Development and learning

Literacy campaign

To promote reading, we are providing all children who come to Boston Children’s with a new book and literacy tip sheet. We are also starting the very first Boston affiliate of the Next Chapter Book Club for teens and young adults with Down syndrome.

‘Mae’s Market’

We have a virtual store, “Mae’s Market,” that allows us to provide families with items and materials to promote development, such as honey bear cups, Signing Times DVDs, and educational resources such as flashcards and early learning materials at no cost. In addition to distributing Signing Times DVDs to families, we offer an annual Introduction to Sign Language workshop.

Allen C. Crocker Speaker Series

The Down Syndrome Program offers the Allen C. Crocker Speaker Series, a series of webinars on a range of topics related to Down syndrome. These talks are simultaneously webcast and recorded, and then are archived for future viewing.  Please find archived talks below.

Health and wellness

DS-Fit

DS-Fit is an eight-week fitness program for teenagers with Down syndrome with small group fitness classes and a home fitness program.

Complex Needs Parent Support Group

The Complex Needs Parent Support Group is co-hosted by our Program and the Massachusetts Down Syndrome Congress. This group for parents of children with complex medical, neurodevelopmental, and mental health needs meets quarterly at Boston Children’s Hospital Waltham.

Yoga

Emily Davidson, MD, teaches an inclusive yoga class for children with Down syndrome and their siblings and friends.

To learn more about any of the programs or activities above, please reach out to our program coordinator, Angela Lombardo, at angela.lombardo@childrens.harvard.edu.

Resources and guides

Boston Children’s Hospital Down Syndrome Program Brochure

Health Care Guidelines for Children with Down Syndrome (English and Spanish)

Boston Children’s Hospital Down Syndrome Program Resource Guide (English and Spanish)

Behavior Guide

Down syndrome and Autism Resources

Toilet Training Guide

Early Communication Guide

Sleep Study Social Story

Seminars

Medical and Neurodevelopmental Conditions

Healthy Lifestyles and Nutrition and Down Syndrome

Vision Concerns and Down Syndrome

Medical and Neurodevelopmental Conditions

Healthy Lifestyles and Nutrition and Down Syndrome

Vision Concerns and Down Syndrome

Thyroid Concerns and Down Syndrome

Autism and Down Syndrome

Health Care Guidelines and Down Syndrome

Thyroid Concerns and Down Syndrome

Autism and Down Syndrome

Health Care Guidelines and Down Syndrome

Infantile Spasms and Down Syndrome

Early Communication Development and Down Syndrome

Complex Medical Needs in Kids with Down Syndrome

Infantile Spasms and Down Syndrome

Early Communication Development and Down Syndrome

Complex Medical Needs in Kids with Down Syndrome

Physical Therapy and Down Syndrome

Behavior and Down Syndrome

Orthopedic Concerns and Down Syndrome

Physical Therapy and Down Syndrome

Behavior and Down Syndrome

Orthopedic Concerns and Down Syndrome

ADHD and Down Syndrome

ADHD and Down Syndrome