CAPE Program focused

1.     Graham RJ, Rodday AM, Parsons SK. Family centered assessment and function for children with chronic mechanical respiratory support. J Pediatr Health Care. 2014; 28(4): 295-304.
2.     Casavant DW, McManus ML, Parsons SK, Zurakowski D, Graham RJ. Trial of telemedicine for patients on home ventilator support: feasibility, confidence in clinical management and use in medical decision-making. J Telemed Telecare. 2014; 20(8):441-449.
3.     Graham RJ, McManus ML, Rodday AM, Weidner RA, Parsons SK. The impact on family of pediatric chronic respiratory failure in the home. J Pediatr. 2016; 175:40-46.

4.     Graham RJ, McManus ML, Rodday AM, Weidner RA, Parsons SK. Chronic Respiratory Failure: utilization of a pediatric specialty integrated care program. Healthcare: The Journal of Delivery Science and Innovation. 2017; 5(1-2):23-28.

5.     Rodday AM, Graham RJ, Weidner RA, Terrin N, Leslie LK, Parsons SK. Predicting health care utilization for children with respiratory insufficiency using parent-proxy ratings of children’s health-related quality of life. J Pediatr Health Care. 2017; 31(6): 654-662.

6.     Graham RJ, McManus ML, Rodday AM, Weidner RA, Parsons SK. Pediatric Specialty Care Model for Management of Chronic Respiratory Failure: Cost and Savings Implications and Misalignment with Payment Models. Pediatr Crit Care Med. 2018; 19(5):412-420. (Featured article) DOI: 10.1097/PCC.0000000000001472
Clinical care focused

7.     Graham RJ, Fleegler EW, Robinson WM. Chronic Ventilator Need in the Community: A 2005 Pediatric Census of Massachusetts. Pediatrics. 2007;119(6):e1280-1287.

8.     Graham RJ, Pemstein DM, Palfrey JS. Included but isolated: early intervention programmes provision for children and families with chronic respiratory support needs. Child Care Health Dev. 2008;34(3):373-9.

9.     Edwards JD, Davidson EJ, Houtrow AJ, Graham RJ. Pediatric resident attitudes toward caring for children with severe disabilities. Am J Phys Med Rehabil. 2010; 89(9):765-771.

10.     Edwards JD, Kun SS, Graham RJ, Keens TG. End-of-Life Discussions and Advance Care Planning for Ventilator-Dependent Children with Life-Limiting Conditions. J Palliative Care. 2012; 28(1):21-27.

11.     Edwards JD, Houtrow AJ, Vasilevskis EE, Rehm RS, Markovitz BP, Graham RJ, Dudley A. Chronic conditions among children admitted to U.S. PICUs: their prevalence and impact on risk for mortality and prolonged length of stay. Crit Care Med. 2012; 40(7): 2196-2203.

12.     Martinez EE, Smallwood CD, Bechard LJ, Graham RJ, Mehta NM. Metabolic assessment and individualized nutrition in children dependent on mechanical ventilation at home. J. Pediatr. 2015; 166(2):350-357.

13.     Martinez EE, Bechard LJ, Smallwood CD, Duggan CP, Graham RJ, Mehta NM. Impact of individualized diet intervention on body composition and respiratory variables in children with respiratory insufficiency: A pilot intervention study. Pediatr Crit Care Med. 2015; 16(6):e157-64.

14.     Mehta NM, Newman H, Tarrant S, Graham RJ. Nutrition status and nutrient intake challenges in children with spinal muscular atrophy. Pediatr Neurol. 2016; 57:80-83.

15.     Watters K, O’Neill M, Zhu H, Graham RJ, Hall M, Berry J. Two-year mortality, complications, and healthcare use in children with Medicaid following tracheostomy. Laryngoscope. 2016; 126(11):2611-2617.

16.     Perez-Losada M, Graham RJ, Coquillette M, Jafarey A, Castro-Nallar E, Aira M, Freishtat RJ, Mansbach JM. The temporal dynamics of the tracheal microbiome in tracheostomised patients with and without lower respiratory infections. PLoS One. 2017; 12(8): e0182520.

17.     Rodday AM, Graham RJ, Weidner RA, Rothrock NE, Dewalt DA, Parsons SK. Leveraging pediatric PROMIS item banks to assess physical functioning in children at risk for severe functional loss. Journal of Patient Reported Outcome. 2017; 1(10): e-pub DOI: http://dx/

18.     Perez-Losada M, Graham RJ, Coquillette M, Jafarey A, Castro-Nallar E, Aira M, Hoptay C, Freishtat RJ, Mansbach JM. The tracheal microbiota in patients with a tracheostomy before, during, and after an acute respiratory infection. Pediatric Infectious Disease Journal. 2018; in press.

19.     Martinez EE, Quinn N, Arouchon K, Anzaldi R, Tarrant S, Ma NS, Darras BT, Graham RJ, Mehta NM. Comprehensive nutritional and metabolic assessment in patients with spinal muscular atrophy: opportunity for an individualized approach. Neuromuscul Disord. 2018; e-pub Mar 19, 2018 ahead of print. DOI: 10.1016/jnmd.2018.03.009.