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Today it's been 5 years since my son Matthew's A.V. Canal repair. I remember the nurses: Shannon, Jaime, and Patrick....They were so good with Matthew and with my husband and I.
If it wasn't for Children's Hospital and the Cardiac wing he wouldn't be here. Thank you all for what you have done for us and giving him a chance to grow in front of our eyes! Thank you Dr. Mah, Dr. Baird, and Dr. de Ferranti we owe you the world.
5 years ago today, I placed my one week old son in Dr. Emani's hands to repair his COA. I remember it like it was yesterday, and I'm thankful every day for the care we received at the Heart Center at Boston Children's Hospital.
1 year ago today Dr Baird performed open heart surgery on Cayman. It did NOT slow him down. Today his heart is as good as new and he barely even has a scar. Thank you Dr Baird and everyone on the cardiac floor at Boston Children's Hospital.
Two years ago today we were at Boston Children's Hospital and our daughter, Emily, was having an aortic stent placed. We were told it would have to be replaced by the time she turned 2 (which was last June) but its still in place and working beautifully. We thank God every day for the amazing work of Dr. Gerald Marx and Dr. James Lock.
This weekend we celebrated our beautiful daughter, Mikayla's 1st birthday and that’s thanks to the amazing surgeons and staff on the 8th floor!! Mikayla was born with a rare diagnosis of Pentalogy of Cantrell which included several heart defects.
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At Boston Children’s, we treat many patients with aortic valve disease—from fetuses to young adults. Many of our patients are born with primary congenital aortic valve disease, such as unicusp or bicuspid aortic valves, while others have an acquired form of aortic valve disease, meaning a form of disease that develops after birth.
For some patients, such as those with significant continued aortic stenosis and/or regurgitation, surgery is often required. Between 2005 and 2011, we performed more than 300 aortic valve surgeries.
Although aortic valve repair is the procedure chosen most often at centers for infants, children and young adults, repair procedures don’t always work the long-term—largely because the material used to replace the “leaflets” in the aortic valve stops working over time. At Boston Children’s, we have designed a clinical trial to address some of the problems associated repair procedures.
Using new technology and techniques, our trial compares a commercially available material for preparing these leaflets with “pericardium,” which is the sac that surrounds the heart, the aorta and other vessels. With these new approaches, we try to simulate aortic valve surgical repair cases that were performed at Boston Children’s Hospital, and we use this information to evaluate our methods.
Using advanced diagnostic imaging techniques, some fetuses are now being diagnosed with aortic valve disease. Some of these patients may benefit from interventions before they are born.
Since 2005, we have performed more than 100 fetal interventions for aortic valve stenosis. After birth, these patients are closely monitored. On occatV clinic sion, they need additional interventions. Since 2006, we have performed more than 200 catheter-based aortic valve dilations on neonates and infants —including 75 on patients who were less than four weeks old.
Aortic valve repair vs. replacement
Because of the size limitations of the prosthetic valves currently available, our recent focus has been on developing solutions and techniques to repair aortic valves that will remain structurally intact and keep the other parts of the heart strong and healthy.
Conditions associated with aortic valve disease
Aortic regurgitation or stenosis associated with:
Congenital Aortic Stenosis
Hypoplastic Left Heart Syndrome (HLHS)
Endocarditis involving aortic valve
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