Cleft Lip and Palate Program | Patient Stories

At Boston Children’s Hospital, we are dedicated to caring for every child, including those with the most complex conditions. We provide these families with the education, treatment, and ongoing resources that they need. Time and time again, these families thank us for treating their children not just as patients but also as people.

While our team of specialists is exceptional, so too are the inspiring patients we treat. We invite you to learn more about some of the special children in our care.

A tale of two smiles: Logan’s story

When Logan’s parents learned that he would be born with a bilateral cleft lip and palate, they were understandably shocked. It was only after he was born that they learned his name means “little warrior.”  His mother, a nurse and poet, has shared is triumph over cleft lip and palate through poetry and her blog, A Tale of Two Smiles.

Jack's journey managing Robin sequence

Jack was born with Robin sequence and a cleft palate. Through prenatal consultation in the Maternal Fetal Care Center, they were able to plan for Jack’s safe arrival into the world. His mother, Jennifer, is a disabilities expert and shares her own experience as a parent through Jack’s journey.

Thriving with unilateral cleft lip and palate: Aiden’s story

Bonnie and Adam Warshaver learned about Aiden’s cleft lip and palate at their 18-week ultrasound. The news was initially devastating.  They worked with the plastic surgery and dental teams to set a plan of care before birth. With three operations behind him, Aiden is thriving.

Evvie’s cleft lip and palate journey

When Drs. Andrew and Karen Wu moved to Manchester, New Hampshire, they were thrilled to be closer to Boston Children’s Hospital for their eldest daughter’s care. They had no idea just how fortuitous their decision would be until a few years later when their third daughter, Evelyn, “Evvie,” was prenatally diagnosed with cleft lip and palate. As physicians themselves, they knew the importance of preparing their older daughters for what to expect. In return, they had two amazing helpers to support Evvie through her journey.

Answers, Treatment and Coordinated Care for Brooks

Rick and Aimee Bellew were devastated when they learned that their son, Brooks, would be born with cleft lip and soft palate. Like any parent, they launched into their own research to learn more about treatment options for their baby. Frustrated at the lack of information about long-term options for children born with this condition, they turned to the experts at Boston Children’s Hospital, who walked them through every detail of what to expect.

After three successful surgeries, the Bellews say family and friends say they can’t even see any visible signs of the repair work that was done.

Read the full story, “Life after cleft lip surgery: Finding Brooks’ smile,” on the Boston Children’s Hospital blog.

A Parent’s View: The Importance of Children’s Hospitals

The first time Boston Children’s Hospital saved my son’s life, he was 21 hours old.

It wasn’t a surprise — Joey had been diagnosed in utero with both a ventricular septal defect (VSD), a hole between the right and left sides of his heart, and a duodenal stenosis, where a portion of the intestine is so constricted that very little can pass through, by doctors in the Maternal Fetal Care Center. Read more about Joey's cleft palate repair here.

Make an Appointment

For an appointment, more information, or to obtain a second opinion for your child, please call us at 617-355-6309 or email samantha.hall@childrens.harvard.edu.

International Patients

For families residing outside of the United States, please call Boston Children's International Health Services at +01-617-355-5209.