Celiac Disease Program | Patient Resources

We understand it can be a large adjustment to start a gluten free diet after a diagnosis for celiac disease. We offer many resources to help supplement and support you at home after you have seen our clinical team. In addition we have recipes, videos and patient information through our celiac kids connection.

Educational Comic Book

Our patients receive a copy of Amy Goes Gluten-Free: A Young Person's Guide to Celiac Disease, a comic book developed by clinicians at Boston Children’s Hospital to help children understand celiac disease. The book is packed with pages of colorful pictures, nutrition information and activities and is available when you come in for your appointment by request. Amy Goes Gluten-Free provides tips and advice for how to go gluten-free in the context of a detective storyline.

Videos

When a child has celiac disease, education is key for the whole family. By understanding the disease, parents can feel more at ease and help their children live full, happy lives.

Each of the video segments below provides practical information about celiac disease from families living with the disease and their health professionals. 

Boston Children's Hospital will teach you and your family about a healthful celiac lifestyle. Education is key in making parents feel more at ease and allow children with celiac disease to live happy and productive lives.

Each of our video segments provides practical information about celiac disease from real-life families, as well as health professionals. 


 

I. Introduction: Experiencing Celiac Disease

II. What is Celiac Disease?:Diagnosis and treatment

III. Diet InformationHow to start and maintain a gluten free diet.

IV. A Gluten Free HomeHow to keep your kitchen organized and safe.

V. ShoppingHow to shop for gluten free food.

VI. CookingHow to cook and bake gluten free foods.

 

VII. SchoolHow to prepare your child with celiac disease for school.

VIII. Dining OutHow to order and eat out at restaurants.

IX. Away From HomeHow to plan for activities and travel.

X. Emotional Adjustments: How to adjust & cope.

XI. Kids Speak: What kids with celiac disease have to say about life with the condition.

Managing celiac disease at school

Schedule a visit with our Boston Children’s Celiac Program team to discuss celiac disease accommodations in school. There are several federal laws that public schools and those that receive federal funding are required to follow, including the Americans with Disabilities Act and Section 504 of the Rehabilitation Act. Most private schools also have a formal documentation plan process to manage the needs of a child with celiac disease. Our team can work with you and your child’s school to set up a plan to ensure a safe and inclusive school year. Visit our meeting registration page to schedule a visit.

For 2020 voluntary recommendations for managing celiac disease in learning environments, download here.

Watch videos from the Celiac Disease School Action Guidelines for Education (SAGE) Training Program below:

Watch: SAGE Training Program videos

Managing Celiac Disease in Learning Environments

What is Celiac Disease?

The Gluten-Free Diet

Managing Celiac Disease in Learning Environments

What is Celiac Disease?

The Gluten-Free Diet

Supporting Social, Emotional Development

Federal Laws that Govern Celiac Disease

Where is Gluten Found in Schools?

Supporting Social, Emotional Development

Federal Laws that Govern Celiac Disease

Where is Gluten Found in Schools?

What Families Can Expect at School

What Families Can Expect at School