Cardiomyopathy Program Overview

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Contact the Cardiomyopathy Program

Cardiomyopathy is a condition that affects the structure and function of the heart muscle. There are several forms of the disease, and each one has a variety of possible causes and symptoms. If your child has been diagnosed with cardiomyopathy, it is important that you find a doctor who is experienced and who thoroughly understands your child’s condition.


Our expertise

At Boston Children's Hospital Heart Center - part of the #1 ranked Heart Center - we are fortunate to have a number of cardiomyopathy experts who regularly evaluate and care for babies, children and teens with this disease.

Services offered through our Cardiomyopathy Program include:

  • advanced diagnostic testing
  • individualized medication regimens
  • family screening and genetic assessment
  • implantable automatic defibrillator placement
  • ventricular assist device placement
  • surgical evaluation
  • heart transplantation
  • customized second opinion evaluation and care plan
  • partnership and collaboration with each family's local pediatrician and/ or cardiac caregiver

About Cardiomyopathy

Cardiomyopathy is a disease of the heart muscle that decreases the heart's ability to pump blood. It is a leading cause of heart failure and the most common reason for a person to need a heart transplant.

Unlike other congenital heart conditions, there is no surgical treatment or “cure” that can repair the damaged heart or the stop the progression of the disease. Treatment options usually include:

  • medication to improve the functioning of the heart
  • ventricular assist devices for children with arrhythmia (irregular heart rhythm)
  • heart transplant for children who do not respond well to medical management

Learn more about cardiomyopathy and how Boston Children’s cares for children with cardiomyopathy.

The future of pediatrics will be forged by thinking differently, breaking paradigms and joining together in a shared vision of tackling the toughest challenges before us.”
- Sandra L. Fenwick, President and CEO

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