Department of Neurosurgery | Patient Stories

How Tim Froio became a bionic man

Implanting electrodes deep in the brain sounds like something out of science fiction,  but it's helped calm down violent, involuntary jerky movements that were robbing Tim Froio of a normal life. Read his fascinating, still-evolving story here.

Tyler's story: 20 surgeries with a smile

The Thriving Blog featured 9 year-old Tyler Bois, diagnosed with two conditions that affect his brain and spinal cord, yet he has not let either diagnosis or the 20 surgeries he’s had prevent him from dreaming big. The Bois family relocated to Vermont when Tyler was 1 and transferred his care to Boston Children’s Spina Bifida Center, where his surgeries have taken place under the care of neurosurgeon Dr. Michael Scott and Dr. Ben Warf. Read more here.

The athlete who couldn’t be tamed by a brain hemorrhage

Read about Carly Coughlin, a superstar athlete running a 5:32 mile at the young age of 14. Her heroes are Tom Brady, Malcolm Butler and Ed Smith, the Boston Children's neurosurgeon who saved her life. After emergency surgery to repair a brain hemorrhage Carly’s career aspirations have shifted, and the Cape Cod track star is reading studies about arteriovenous malformation (AVMs) and pondering the world of neurosurgery. 

How craniosynostosis turned a Costa Rican family into New England Patriots fans

Marcel’s family’s global search for the best doctors brought them here to Boston Children’s and neurosurgeon Mark Proctor, MD, renowned expert in a minimally invasive approach to treating craniosynostosis. Read more here.

Twin surgeries bring this family a stroke of luck

Follow patients Ryan and Tyler through their experiences with Moyamoya disease and treatment at Boston Children's Hospital. Read more here.

Yousef's Vein of Galen surgery

When a Vein of Galen malformation was discovered in Yousef Alrkhayes' brain, a neurologist in their hometown of Kuwait City said he would be able to operate on Yousef at six months with a 40 percent chance of success—a prospect Yousef’s parents weren’t satisfied with. Because the malformation was so rare, they soon realized, they would need to find help outside of the country. Read more of Yousef's story at Boston Children's here

Stopping seizures with laser therapy

13-year-old Justin Griffin was suffering from weekly epileptic seizures due to an area of abnormal tissue in his brain. His seizures were not able to be controlled by taking medication and his family was looking for other options. Using recent advances in imaging technology, doctors were able to insert a laser into Justin's brain through a tiny hole in his skull and destroy the area that was causing his seizures.

Miles’ Story

Baby with Craniosynostis

Affecting about one in 2,500 children, craniosynostosis is a disease in which the bone plates in a baby’s head fuse too early. Untreated, this can lead to excess pressure in the skull and learning disabilities, in addition to cosmetic deformity. To learn more about craniosynostosis, its treatment and baby Miles' story, click here.