Neuroscience Family Advisory Council

The Neuroscience Family Advisory Council (NFAC) held its first meeting in November 2019, after more than two years of work by leadership teams in the Department of Neurology, the Department of Neurosurgery, the Division of Epilepsy, and the Division of Neurophysiology (collectively known as Neuroscience), in an effort to realize a shared vision to partner with patients and their families to improve the care experience.

The NFAC’s mission is to ensure that patients with nervous system conditions and their families are engaged in decisions that affect patient quality of care, safety, and experience. The NFAC will partner with the hospital to help promote patient and family centered care and decision making, implement new projects, and ensure communication and cooperation among families, staff, and care teams. NFAC members will draw from their experiences to help the hospital identify and address areas for improvement and enhance the resources and experience of families who seek care in the Neuroscience Center.

The NFAC is made up of dedicated Neuroscience Center staff members and patient families representing a variety of experiences and perspectives. Volunteers who take part in the NFAC meet on a regular basis to help engage in fruitful collaboration of families and staff. One initial NFAC project is a virtual family forum series, the first of which will be held the summer of 2020. 

NFAC member Natasha Aljalian is mother to Mary, a 7-year-old patient with epilepsy. Learn more about Mary’s story. Natasha is also a member of the hospital-wide Family Advisory Council and Emergency Department Advisory Council.

Aljalian joined NFAC because patients seen by neurology, neurosurgery, or epilepsy have specific concerns and experiences that need to be addressed. Being able to partner with these departments helps to improve the care experience and outcomes both for providers and patients. “I’m very excited to be a part of the NFAC and look forward to working with other families and the Neuroscience Center members,” says Aljalian.