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The Cystic Fibrosis Center at Boston Children's Hospital is one of the oldest and largest cystic fibrosis centers in the United States. Caring for more than 600 children and adults each year, the CF Center provides comprehensive services, ranging from evaluation and diagnosis to treatment and patient education.
The CF Center is proud to report that our patients continue to fare in the top 10 to 20 percent of patients nationwide for a variety of health parameters, including lung function and nutritional status.
Boston Children’s CF Center is staffed by an experienced team of clinicians, all of whom have specialized training in the care of patients with cystic fibrosis. Our multidisciplinary staff includes:
Our staff is involved in CF programs within the community, educates physician trainees at Harvard Medical School and is actively engaged in research into new treatments for cystic fibrosis—including potential therapies that target the lungs and digestive system and new treatments to correct the problems that cause CF.
The Cystic Fibrosis Center was recently selected as one of the 2009 recipients of the annual Cystic Fibrosis Foundation’s Quality Care Award: Recognizing Outstanding QI Processes and Accomplishments. To be considered for the award, an organization must show sustained quality improvement work that improved outcomes; actively use clinical outcomes data to identify opportunities for improvement; document results of improvement efforts; involve patients and families in identifying, designing and implementing improvement efforts; employ innovative strategies to improve care processes and outcomes; and implement system changes that result in high reliability of care processes.
The Cystic Fibrosis Center at Boston Children's Hospital is one of the oldest and largest cystic fibrosis centers in the United States and was founded by Dr. Harry Schwachman, one of the earliest physician investigators to help characterize the disorder.
Under the direction of Dr. Mary Ellen Wohl from 1986-2005, and now supervised by our current director, Henry Dorkin, MD the CF Center is proud to report that our patients continue to fare in the top 10 to 20 percent of the country for a variety of health parameters including lung function and nutritional status.
Our staff is involved in CF programs within the community, the education of physician trainees at Harvard Medical School, publishing in professional journals, and leading research that is advancing the way cystic fibrosis is treated.
As people with cystic fibrosis age, they often develop more adult-specific health issues. So it's important that they be seen by a physician trained in adult care.
At Boston Childrens' Cystic Fibrosis Center, our Adult Transition program allows adolescents with CF to successfully transition to adult care providers.
Currently, more than 85 percent of our adult patients are seen by adult providers. We have established the following guidelines to help us achieve our goal of 90 percent by April 2007:
Patients are seen by pediatric care providers without their parents in the room. After the evaluation parents may return to the room to meet with the doctors and nurses.
Adult care providers (physician and/or nurse coordinator) introduce themselves to the patient and family.
Patients are seen in the Cystic Fibrosis clinic by adult care providers. If possible, this occurs at the first visit after the patient's 18th birthday.
Patients are hospitalized at Boston Children's Hospital.
Patients may be hospitalized at Brigham & Women's Hospital or Faulkner Hospital (BWH/FH). Each patient is evaluated by their CF team to determine the suitability of the referral. Once they have been admitted to BWH/FH, subsequent admissions usually take place at BWH/FH.
BWH Inpatient Admission Information
We are grateful to have been ranked #1 on U.S. News & World Report's list of the best children's hospitals in the nation for the third year in a row, an honor we could not have achieved without the patients and families who inspire us to do our very best for them. Thanks to you, Boston Children's is a place where we can write the greatest children's stories ever told.”