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Children's Hospital Boston pediatric neurologist Mark Gorman, MD, has developed the Pediatric Multiple Sclerosis and Related Disorders Program to care for children and teens with multiple sclerosis (MS), acute disseminated encephalomyelitis (ADEM), optic neuritis and transverse myelitis. The program's team includes a nurse, pediatric neuropsychologist, educational liaison, child psychiatrist, social worker and family advocate.
Traditionally an "adult" disease, pediatricians may not expect to see young patients with MS. However, it is becoming increasingly diagnosed in children and teens, with up to 10 percent of patients with MS first developing symptoms before age 18. Symptoms present in a relapsing-remitting fashion and include:
vision loss or double vision weakness numbness or tingling clumsiness and difficulty walking declining school performance
Pediatricians with patients presenting with such symptoms can refer for further evaluation. Children's specialists conduct a neurologic exam, brain and spine MRIs and a lumbar puncture to determine the diagnosis. Through a close follow-up process, Dr. Gorman and his team pay special attention to distinguishing one-time events, such as ADEM, from recurrent disorders, such as MS. If MS is diagnosed, prophylactic treatment, such as interferons, is offered to reduce relapses and improve the long-term prognosis. If patients do not respond, there are several second- and third-line agents available. If relapses occur, outpatient infusions of corticosteroids are available to avoid unnecessary hospitalizations. Patients with MS and related disorders receive comprehensive care, including a neuropsychology assessment to identify potential learning disabilities and guidance in formulating education plans.
Because MS is a chronic disease requiring ongoing care through adulthood, Children's program helps patients transition to adult specialists.
Make a referral: 617-355-2758
More information: childrenshospital.org/ms
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