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The Pediatric Cancer Risk Program (PCRP) at Dana-Farber/Children's Hospital Cancer Center provides multidisciplinary consultative care to patients and their families whose condition or family history suggests an increased risk of cancer. The program offers patients access to expert pediatric geneticists, genetic counselors and other specialists at Children's, as well as world-renowned pediatric oncologists from Dana-Farber/Children's Hospital Cancer Center.
Program basics
The first of its kind in New England, our program accepts referrals, second opinions and consultations for evaluation of children who have cancers with known hereditary links, genetic defects associated with cancer development, or children with family histories that place them at a higher risk for cancer development.
An integrated approach
Our integrated approach to care offers a comprehensive evaluation and follow-up for children at risk. Cases are reviewed in a multidisciplinary clinic conference; if needed, we recommend referrals to additional specialists. Adult family members of at-risk children may be referred to Dana-Farber Cancer Institute's Cancer Genetics and Prevention Program.
A cancer risk assessment can provide you and your patient with more information about cancer risk and appropriate screening. A certified genetic counselor assesses each case according to individual needs, coordinates all patient visits and determines if the patient should be seen by an oncologist at Dana-Farber Cancer Institute and/or a geneticist at Children's Hospital Boston.
When to refer
Referral to the PCRP is recommended for children with a history of cancers with known hereditary links or for children with the following genetic syndromes or history:
- ataxia telangiectasia
- Beckwith-Wiedemann syndrome
- children whose parents have known cancer predisposition syndromes
- Cowden syndrome
- familial adenomatous polyposis
- Li-Fraumeni syndrome
- multiple endocrine neoplasia
- multiple family members with colon cancer
- pheochromocytoma
- retinoblastoma
- strong family history of cancer
- Von Hippel-Lindau syndrome
- X-linked lymphoproliferative syndrome
Materials may be sent to:
Pediatric Cancer Risk Program,
Fax: 617-730-0466
Children's Hospital Boston,
Hunnewell 5 300 Longwood Avenue,
Boston, MA 02115
More information: childrenshospital.org/cancer, childrenshospital.org/genetics
Make a referral: 617-355-4388
Our team includes members from the Dana-Farber/Children's Hospital Cancer Center, Division of Genetics at Children's Hospital Boston and the Cancer Risk and Prevention Program at Dana-Farber Cancer Institute.
Lisa R. Diller, MD
Chief Medical Director
Dana-Farber/Children's Hospital Cancer Center
Mira B. Irons, MD
Associate Chief, Division of Genetics,
Children's Hospital Boston
Stephen Huang, MD
Director, Thyroid Program,
Children's Hospital Boston
Victor L. Fox, MD
Director, Center for Pediatric Polyposis,
Children's Hospital Boston
Jill Brace O'Neill, MS, RN-CS, PN
Pediatric Nurse Practitioner
Dana-Farber/Children's Hospital Cancer Center
Wen-Hann Tan, BMBS
Geneticist
Children's Hospital Boston
Katherine Schneider
Genetic Counselor
Dana-Farber Cancer Institute
Carly Grant
Genetic Counselor
Dana-Farber Cancer Institute
Sharyn Lincoln, MS
Genetic Counselor
Children's Hospital Boston
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