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Children's Neuromuscular Clinic will receive funding as a regional center in the Muscular Dystrophy Association Clinical Research Network. As a member of this network, Basil Darras, MD, director of Children's Neuromuscular Program, will head up a natural history study of Duchenne muscular dystrophy (DMD)-the first to relate the molecular genetics of dystrophinopathies
to the longevity of DMD patients.
More information: childrenshospital.org/neuromuscular
On January 28 at 4 p.m. EDT, specialists
at Children's will show excerpts from a surgical procedure to repair encephalocele and an arachnoid cyst. The clinical team, including John Meara, MD, DMD, MBA, plastic surgeon-in-chief, and Edward Smith, MD, assistant in Neurosurgery, will answer email questions from viewers.
Learn more or sign up for an email reminder:
or-live.com/childrenshospitalboston/2494
After a site visit earlier this year, Children's has been recertified as a Level I Pediatric Trauma Center.
The hospital's Extracorporeal Membranous Oxygenation (ECMO) Program received the Excellence in Life Support Award from the Extracorporeal Life Support Organization (ELSO). The award recognizes excellence in promoting the mission, activities and vision of ELSO; excellence in patient care by using the highest quality measures, processes and structures based upon evidence; and excellence in training, education,
collaboration and communication that
supports the ELSO guidelines and
contributes to a healing environment.
Children's was named a 2008 Top Hospital in the Leapfrog Hospital Survey. The voluntary survey is the nation's premier hospital patient safety evaluation tool and provides
consumers and health care purchasers with assessments of 1,220 participating hospitals' quality and safety. The survey's four main categories are providing accurate
prescription orders, performance in seven complex high-risk procedures, staffing the ICUs with highly qualified specialists and
utilizing safety practices and policies to reduce harm and errors.
More information: leapfroggroup.org
Children's has opened a Neurology Step Up Unit (SUU) designed to care for the sickest non-ICU inpatients with neurologic needs. Although the SUU does not accept patients who have arterial lines or who are on ventilators, any other patients admitted to Children's whose principal health concern is neurologic can be considered for admission.
Children's was included in the Boston Globe's 100 Top Places to Work list, which came out in November. This is the first year the paper has issued such rankings, which identify leading workplaces in Massachusetts based solely upon the opinions of employees. Children's ranks 16th on the overall list and 5th on their Top 25 Large Workplaces list.
Teaching Strategies for Health Education and Health Promotion: Working with Patients, Families and Communities
By Jane Romano, MSN, RN, staff development specialist at Children's, with others
This resource
presents
information on how people learn about their health and examines the role of health professionals in helping patients understand, prevent and manage their illnesses. Designed to offer health professionals useful tools for providing comprehensive patient care, the text is filled with case studies and analysis.
Angiogenesis: An Integrative Approach from Science to Medicine
Edited by Judah Folkman, MD, and William Figg
Judah Folkman, MD (1933-2008), founder of the Vascular Biology
program at
Children's, helped compile this
extensive book discussing the biological processes and molecular mechanisms involved in angiogenesis. With more than 100 contributors, the book connects various health disciplines, unifying the field of angiogenesis research.
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