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June, 2003

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Racial disparities in health care
Tracy Lieu, MD, MPH,is a Children's pediatrician and the director of the Center for Child Health Care Studies, a research and teaching collaboration between Harvard Medical School and Harvard Pilgrim Health Care. She recently talked to Pediatric Views about the implications her research may have for understanding racial disparities in health care.

How Children's Hospital Boston is addressing cultural competence:

In 1999, Children's staff published "Honoring Patient Preferences: A Guide to Complying with Multicultural Patient Requirements" (Jossey-Bass).
This is one of many resources made available to Children's staff on understanding diverse religious and cultural traditions.

In 2001, Children's established a Diversity and Cultural Competency Task Force to focus on cultural competence issues in family education and services, human resources and staff training, and clinical and support services.

Beginning in 2004, Children's new director of Diversity and Cultural Competence will lead a comprehensive analysis of the hospital's existing diversity initiatives and resources in this area, and will be charged with improving, coordinating and expanding upon those efforts.

For more information on Dr. Lieu's work, see "Racial/Ethnic Variation in Asthma Status and Management Practices Among Children in Managed Medicaid," Pediatrics, May 2002.

How serious are racial disparities in health care?
It's quite a serious problem, and extremely pervasive. The healthcare system has effective ways of improving health, but these are sometimes not reaching the populations that need them most. It would be a simple issue if we could blame all of the disparities on financial access to care, but it turns out to be far more complex than that. In studies that have looked at patients who have good insurance and good financial access to health care, it turns out that black adults and children are sometimes still less likely to receive effective services than white children and adults. There are many researchers trying to figure out why that is.

What can your research on asthma tell us about health care disparities in general?
Asthma is one of the most important diseases in childhood, and it affects black children more often and more severely than it affects white children. No one, however, has been able to say exactly why. In addition, if a black child and a white child have asthma attacks of equal severity, the black child is more likely to be hospitalized. This raises some complex questions: Are doctors less likely to recommend preventive medicines to black patients? Are black families less likely to adopt these medicines if they are recom-mended? We don't completely understand what's going on, but we think that the lapse in care probably lies in patterns of communication between physicians and parents. For example, a doctor might recommend appropriate preventive medicine for a child with asthma, but if a communication gap occurs, the parent may not understand that it's meant to be used every day. The hypothesis is that these types of gaps arise more frequently for black and Latino families.

Your research focuses on "culturally tailored interventions." What do you mean by that?
Culturally tailored interventions try to take into account the fact that families from different cultures come to the healthcare setting with different beliefs about what causes disease, what medicines are for and the risks that medicines may have.

How can this understanding be integrated into patient care?
There are many types of policies that health care systems may put into place to try to address these issues. They may hire more bilingual providers or interpreters, or give everyone training in cultural sensitivity. There are also fairly simple logistical steps, like printing patient information in different languages and representing all races in your printed materials.

In one recent study, we found that practice sites with stronger policies promoting cultural competence not only received more positive feedback from families, but also showed better rates of preventive medicine use among minority patients. That was surprising to me‹I wouldn't have guessed that improvement in care would be so closely associated with action at the policy level.



For resources on culturally effective pediatric care from the American Academy of Pediatrics visit: www.aap.org/commpeds/cepc/resources.htm