Straightening out plagiocephaly

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Resources for clinicians and families

Children's Hospital Down Syndrome Program:
617-355-2209

Early Intervention: (In Massachusetts)
1-800-905-8437, or www.state.ma.us/dph/fch/ei.htm

Parent groups:
Massachusetts Down Syndrome Congress: 1-800-664-6372 or www.mdsc.org. The MDSC offers a First Call Program that connects new parents to other parents of children with Down syndrome.

Nationally, the National Down Syndrome Society web site maintains a directory of support groups at www.ndss.org/content.cfm?fuseaction=InfoRes.SrchFrm

Health care guidelines:
The National Down Syndrome Society has comprehensive guidelines for managing patients with Down syndrome at www.ndss.org/content.cfm?fuseaction=InfoRes.HlthArticle&article=37.

An accompanying How-To guide is available at: www.ndss.org/content.cfm?fuseaction=InfoRes.HlthArticle&article=709

Pamphlets and books:
"A Baby First," a pamphlet from the National Association for Down Syndrome. To order copies for patient families, go to www.nads.org and click on "Products and Publications."

Babies with Down Syndrome: A New Parents' Guide by Karen Stray Gunderson.

A Parent's Guide to Down Syndrome by Siegfried Pueschel, MD, PhD, JD, MPH.

Other up-to-date materials are available through the National Down Syndrome Congress: www.ndsccenter.org/resources/print.asp.