An accurate family medical history is an important tool for genetics providers. To learn more about how to document your family history, please follow the links to Family History Tools.
Many individuals and families who see genetics providers or who participate in genetic research have concerns about how genetic information might be used by third parties (insurance companies, employers, etc.). To learn more about the issue of genetic discrimination and current laws that exist to protect individuals, please follow the links to Genetic Discrimination.
National Society of Genetic Counselors
(follow this link to find additional information about local genetics providers and other valuable genetics resources)
Congenital Cardiovascular Genetics Program
(an excellent resource that includes clinical and research information related to congenital heart disease)