What happens when I join your registry?
Joining the Participant Registry does not obligate you to participate in any of our studies—it simply allows us to let you know when there is a study in your child’s age range. Participant records are kept completely confidential by our research team. Of course, you can unenroll from the registry at any time.
How and when will my family be contacted for a particular study?
Study participation is generally based on a child’s age and/or their diagnosis, when applicable. When your child is potentially eligible for a study, we will send you a letter or an e-mail describing the study in detail. We may then follow up with you by phone to offer more information and answer any questions. If you are interested in participating, we will arrange a time that is convenient for you and your child.
What are study sessions like?
Many study sessions last about one hour, though some require a longer period of time. Most families find participation enjoyable and interesting. If we contact you about a specific study, we will explain in detail what will take place during the session if you decide to participate with your child.
Do you pay people to participate in studies?
Most studies offer a small monetary compensation for your time and travel expenses. Many also give a small toy as a thank you to our young “neuroscientists in training,” as well as free parking and childcare for any siblings who may come along.