Here we provide a list of suggested links. Although we have reviewed the content of these sites and believe they offer appropriate information on neuromuscular disease and related topics, we are not responsible for the actual publications on these sites. Any concerns related to the contents of any of these Web sites should be directed to the webmaster of the linked site.
The Centronuclear and Myotubular Myopathy Information Point
A British information point for all individuals with centronuclear and myotubular myopathy, their families and careers.
The Congenital Muscle Disease International Registry (CMDIR)
Created to identify the global congenital muscle disease population for the purpose of raising awareness, standards of care, assisting with enrollment in clinical trials, and in the future finding treatments or cures.
Cure CMD's mission is to advance research for treatment and a cure for the Congenital Muscular Dystrophies. Cure CMD aims to improve the lives of those living with CMD through engagement and support of the community.
A Foundation Building Strength for Nemaline Myopathy
Is a non-profit organization striving to stimulate, advance and move forward the science of treating myopathies while supporting the community of Nemaline Myopathy with information, resources and solutions.
Joshua Frase Foundation
Created by the parents of Joshua Frase, the Joshua Frase Foundation sponsors part of our research on myotubular myopathy. The Foundation's Web site provides information about this condition as well as upcoming events, useful links, etc.
Muscular Dystrophy Association (MDA)
Sponsoring hundreds of research projects on neuromuscular diseases, the MDA provides listings of active clinical trials, information on muscular disease, as well as available services and resources.
Nemaline Myopathy Web site
Created and designed by David Mc Dougall, the nemaline myopathy (NM) Web site is a complete, well-established online resource for individuals with nemaline myopathy and their families. Meet other families around the world by becoming a member of the warm, lively and supportive NM group.
Sibling Support Project
Based on the belief that an illness or disability affects all family members, the Sibling Support Project focuses on the interests of brothers and sisters of individuals with disabilities.
A database for health care providers including information about laboratories offering clinical and research-based genetic testing. Requires registration.
Online Mendelian Inheritance in Man (OMIM)
A trademark of Johns Hopkins University, OMIM is a comprehensive database including information about many genetic disorders in humans as well as related science-based Web sites.
Millions of scientific articles are accessible through this free, very up-to-date online resource.
More Beggs Lab Information
Boston Children's Hospital Mental Retardation & Developmental Disabilities Research Center (MRRC) - The Beggs Lab
A page describing the MRRC projects led by Dr. Beggs.
Harvard Medical School PhD Program in Biological and Biomedical Sciences - The Beggs Lab
A page describing Dr. Beggs's research as a faculty member of the Harvard Medical School PhD Program.