Measuring Outcomes of Multidisciplinary Neurodevelopmental Evaluations – Validity, Reliability and Feasibility
PI: David Stein
Participants: Adults (parents/guardians), Any Diagnosis
This study aims to measure the effect of developmental evaluations on patients and families by testing the validity and reliability of a new survey, the Developmental Evaluation Effectiveness Survey (DEES). Developmental evaluations involve comprehensive assessment by a pediatrician and psychologist from the Developmental Medicine Center (DMC) at Boston Children’s Hospital. Families who wish to participate in this study will be asked to fill out the DEES survey, along with a few others, on three occasions, twice before their scheduled evaluation in the DMC and once five months after the initial evaluation. The DEES survey will be administered to families via a secure email and login to TriVox health, an online survey tool.