Research

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ADAPT Survey

The Adolescent Assessment of Preparation for Transition (ADAPT) survey focuses on the quality of health care transition planning and preparation for youth ages 16-17 years old with non-complex or complex chronic medical conditions. Funded through the Pediatric Quality Measures Program (PQMP) by the federal Agency for Healthcare Research and Quality (AHRQ) and the Centers for Medicare & Medicaid Services (CMS), the Center of Excellence for Pediatric Quality Measurement (CEPQM) developed this patient-reported survey measure to be made available to public and private payers, providers, and consumers. It may be used to assess quality at the health plan, delivery system, or practice level.

The term “health care transition” broadly encompasses the developmental time period spanning from early adolescence to emerging adulthood (roughly age 12-26 years). Milestones along this period for youth with chronic medical conditions include the development of transition readiness, engagement in chronic disease self-management, and preparation of adult caregivers for eventual transfer of care. Finally, HCT culminates in the establishment of care in the adult-oriented health system. In 2002, a consensus statement on HCT envisioned the goal that by 2010 all physicians who provide primary or subspecialty care to youth with special health care needs (YSHCN) “1) understand the rationale for transition from child-oriented to adult-oriented health care; 2) have the knowledge and skills to facilitate that process; and 3) know if, how, and when transfer of care is indicated.”

However, analysis of the 2007 Survey of Adult Transition and Health (SATH) found that just over one-half of youth ages 19-23 years reported receiving counseling around HCT. These data suggest that many youth, regardless of disease severity, are not receiving anticipatory guidance to support transition to adult care from their pediatric health care providers.

For more information about the measure development process and where to download the survey and instructions for its administration, please see: Development and Content.

Transition from Adolescent-focused to Adult-focused Care Core Team

  • Mark Schuster, MD, PhD (Boston Children’s Hospital & Harvard Medical School)
  • Jonathan Finkelstein, MD, MPH (Boston Children’s Hospital & Harvard Medical School)
  • Katharine Garvey, MD, MPH (Boston Children’s Hospital & Harvard Medical School)
  • Gregory Sawicki, MD, MPH (Boston Children’s Hospital & Harvard Medical School)
  • Sara Toomey, MD, MPH, MPhil, MSc (Boston Children’s Hospital & Harvard Medical School)
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