Hemophilia Resources of America (HRA)
HRA is a full service provider of coagulation products. Site offers a resource library, kids games, information on hemophilia
www.hrahemo.com
Joslin Diabetes Center
Works to improve the lives of people with diabetes and its complications through innovative care, education and research that will lead to prevention
and cure of the disease
www.joslin.harvard.edu
Juvenile Diabetes Research Foundation International
Supports research in search of cure of diabetes and its complications; includes site for children with diabetes
www.jdf.org
The Kidney Advocate
Site offers information about kidney disease, advocacy, resources and support services
www.kidneyadvocacy.50megs.com
Kidney Information Clearinghouse
Resource database for patients with renal disease
www.renalnet.org
LA Kelley Communications
A comprehensive hemophilia resource for educational resources, scholarship programs and a parent empowerment newsletter (PEN)
http://kelleycom.com
Little Hearts, Inc.
Provides support, resources, networking, and hope to families affected by congenital heart defects
www.littlehearts.net
The National Hemophilia Foundation (NHF)
General information as well as a wonderful resource for free literature (HANDI) on blood clotting disorders
www.hemophilia.org
National Kidney Foundation
General information on kidney health, resources for patients and providers
www.kidney.org
National Organization for Rare Disorders
Maintains database of resource/support organizations for rare disorders, as well as providing information about the disorder; also has medication assistance programs
www.rarediseases.org
The New England Hemophilia Association (NEHA)
The local chapter of NHF; can become a member at no charge. NEHA's focus is education and advocacy
www.newenglandhemophilia.org
Second Wind
Information and support for lung transplant patients and families
www.2ndwind.org
Shemophilia.com
A web site for women with inherited bleeding disorders
www.shemophilia.org
United Network for Organ Sharing
Organization which works to promote organ donation and matches donors to transplant patients
www.unos.org
The World Federation of Hemophilia
International organization which offers a listing of hemophilia centers throughout the world
www.wfh.org
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