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| Support Groups The National Coalition for PKU and Allied Disorders has set up a listserv specifically for teens and adults with PKU. The list is composed of teens and adults with PKU. Members come from all over the US and the world. It operated by the exchange of email and is free to join. Because of its nature, the membership is by invitation only. If you are a teen or adult with PKU, and would like to receive an invite to join the list please email Sarah Foster at pkuadult@aol.com and include your name, age, and where you are from.
Resources Medical
Food Composition --Nutrient
Composition of Medical Foods for Amino Acid, Organic Acid, and
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| 800-605-0410
or 973-361-7004 info@medicalfood.com |
Creates great tasting lifestyle products for those with special diet needs. | |
| 866-4lowpro sales@cambrookefoods.com |
Premium foods for people with metabolic disorders and renal disease. | |
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1-800-baby123 AskMeadJohnson@bms.com |
Nutritional Products and information for the whole family. |
| 800-986-8755 | Provides literature and services for health professionals to meet patients needs. | |
| In US: 800-365-7354 In Canada: 877-636-2283 Contact Online |
Provides a wide range of specialized products for the management of conditions that benefit from nutritional therapy. Sign up on the website as a medical professional and get a free memory stick! Individuals with metabolic disorders that sign up get a free bag of low phe pasta! | |
 http://www.vitaflo.co.uk |
1-800-547-5984 | Nutritional products for both patients in and out of the hospital. Vitaflo's North American Agents are Transnational Services & Operations LLC |
 http://www.mdausa.org/publications/ Quest/q104insurance.cfm |
article:
"The Money Trail Keeping Your Insurance Coverage on Track" |
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 http://www.formydiet.com/ |
support@ForMyDiet.com | Helping people with chronic disorders manage their diets |
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