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2.metabolic   |
center list |      Freq.     Percent        Cum.
------------+-----------------------------------
    ChH,Bos |        127       48.29       48.29
       NEMC |         33       12.55       60.84
      UMass |          6        2.28       63.12
     RIhosp |         30       11.41       74.52
     CTChMC |          7        2.66       77.19
        MGH |         12        4.56       81.75
      Maine |         15        5.70       87.45
     VT DPH |          9        3.42       90.87
       Yale |         24        9.13      100.00
------------+-----------------------------------
      Total |        263      100.00

3.Residence   |
state of    |
subject     |      Freq.     Percent        Cum.
------------+-----------------------------------
         MA |        144       54.75       54.75
         CT |         35       13.31       68.06
         RI |         28       10.65       78.71
         VT |         14        5.32       84.03
         NH |         18        6.84       90.87
         ME |         18        6.84       97.72
         NY |          6        2.28      100.00
------------+-----------------------------------
      Total |        263      100.00


4. State       |
completing  |
survey      |      Freq.     Percent        Cum.
------------+-----------------------------------
         MA |        178       67.68       67.68
         CT |         31       11.79       79.47
         RI |         30       11.41       90.87
         VT |          9        3.42       94.30
         ME |         15        5.70      100.00
------------+-----------------------------------
      Total |        263      100.00

5. zip codes (data omitted for this document)

 6. Initials of |
interviewer |      Freq.     Percent        Cum.
------------+-----------------------------------
         CR |        100       38.02       38.02
         JK |         15        5.70       43.73
         JT |         22        8.37       52.09
         CT |          2        0.76       52.85
         BH |         15        5.70       58.56
         SC |         15        5.70       64.26
         CM |         31       11.79       76.05
         PH |          6        2.28       78.33
         MD |         28       10.65       88.97
         RC |         16        6.08       95.06
         KD |          6        2.28       97.34
         CI |          1        0.38       97.72
         CC |          6        2.28      100.00
------------+-----------------------------------
      Total |        263      100.00


7. date of interview   Range 7/7/99-4/17/00 (data omitted for this document)
8. minutes|     Obs        Mean   Std. Dev.       Min        Max
---------+-----------------------------------------------------
 minutes |     263    40.63118   13.09379         20        120  

9. translator  |
used?       |      Freq.     Percent        Cum.
------------+-----------------------------------
         no |        257       97.72       97.72
        yes |          6        2.28      100.00
------------+-----------------------------------
      Total |        263      100.00

10. # affected  |
children in |
family      |      Freq.     Percent        Cum.
------------+-----------------------------------
          1 |        210       79.85       79.85
          2 |         49       18.63       98.48
          3 |          4        1.52      100.00
------------+-----------------------------------
      Total |        263      100.00

11. mother or   |
father?     |      Freq.     Percent        Cum.
------------+-----------------------------------
     father |         27       10.27       10.27
     mother |        234       88.97       99.24
   grandpar |          2        0.76      100.00
------------+-----------------------------------
      Total |        263      100.00


12. Biological  |
parent?     |      Freq.     Percent        Cum.
------------+-----------------------------------
         no |          9        3.42        3.42
        yes |        254       96.58      100.00
------------+-----------------------------------
      Total |        263      100.00

13. parent      |
marital     |
status      |      Freq.     Percent        Cum.
------------+-----------------------------------
    married |        207       78.71       78.71
     single |         20        7.60       86.31
   divorced |         22        8.37       94.68
   separate |          9        3.42       98.10
    widowed |          5        1.90      100.00
------------+-----------------------------------
      Total |        263      100.00

14. language    |
spoken in   |
home        |      Freq.     Percent        Cum.
------------+-----------------------------------
    English |        243       92.40       92.40
    Spanish |         12        4.56       96.96
   Portugue |          1        0.38       97.34
     French |          1        0.38       97.72
     Arabic |          1        0.38       98.10
    EngSpan |          1        0.38       98.48
   Bulgaria |          1        0.38       98.86
    EngPort |          1        0.38       99.24
     Creole |          2        0.76      100.00
------------+-----------------------------------
      Total |        263      100.00




15.  religion |      Freq.     Percent        Cum.
------------+-----------------------------------
   catholic |        149       56.65       56.65
   protesta |         59       22.43       79.09
     mormon |          3        1.14       80.23
     jewish |         13        4.94       85.17
      other |          8        3.04       88.21
       none |         24        9.13       97.34
   Unitaria |          1        0.38       97.72
    jehovaw |          1        0.38       98.10
   pentecos |          2        0.76       98.86
   GreekOrt |          1        0.38       99.24
   Evangeli |          2        0.76      100.00
------------+-----------------------------------
      Total |        263      100.00

16. Variable |     Obs        Mean   Std. Dev.       Min        Max
---------+-----------------------------------------------------
      parage |     261    38.23372   7.340285         20         69  

17. child's year|
of birth    |      Freq.     Percent        Cum.
------------+-----------------------------------
         81 |          8        3.04        3.04
         82 |          6        2.28        5.32
         83 |          7        2.66        7.98
         84 |          8        3.04       11.03
         85 |          4        1.52       12.55
         86 |         18        6.84       19.39
         87 |         17        6.46       25.86
         88 |         20        7.60       33.46
         89 |         20        7.60       41.06
         90 |         19        7.22       48.29
         91 |         19        7.22       55.51
         92 |         18        6.84       62.36
         93 |         10        3.80       66.16
         94 |         23        8.75       74.90
         95 |         10        3.80       78.71
         96 |         16        6.08       84.79
         97 |         16        6.08       90.87
         98 |         17        6.46       97.34
         99 |          7        2.66      100.00
------------+-----------------------------------
      Total |        263      100.00


18. child age |     Obs        Mean   Std. Dev.       Min        Max
---------+-----------------------------------------------------
       childage |     263    101.9848   56.75143          6        225  


19. children  |
in family   |      Freq.     Percent        Cum.
------------+-----------------------------------
          1 |         59       22.43       22.43
          2 |        112       42.59       65.02
          3 |         66       25.10       90.11
          4 |         16        6.08       96.20
          5 |          5        1.90       98.10
          6 |          4        1.52       99.62
         16 |          1        0.38      100.00
------------+-----------------------------------
      Total |        263      100.00








20. birth order |
of child    |      Freq.     Percent        Cum.
------------+-----------------------------------
          1 |        120       45.63       45.63
          2 |         85       32.32       77.95
          3 |         43       16.35       94.30
          4 |         11        4.18       98.48
          6 |          2        0.76       99.24
          7 |          1        0.38       99.62
         11 |          1        0.38      100.00
------------+-----------------------------------
      Total |        263      100.00


21. child's     |
gender      |      Freq.     Percent        Cum.
------------+-----------------------------------
       male |        122       46.39       46.39
     female |        141       53.61      100.00
------------+-----------------------------------
      Total |        263      100.00


22. child's race|   Freq.     Percent        Cum.
------------+-----------------------------------
      white |        240       91.25       91.25
      black |          5        1.90       93.16
   hispanic |         16        6.08       99.24
   Lebanese |          1        0.38       99.62
      mixed |          1        0.38      100.00
------------+-----------------------------------
      Total |        263      100.00

 
23.   PKU? |      Freq.     Percent        Cum.
------------+-----------------------------------
         no |        151       57.41       57.41
        yes |        112       42.59      100.00
------------+-----------------------------------
      Total |        263      100.00

24. mitochondria|
l disease?  |      Freq.     Percent        Cum.
------------+-----------------------------------
         no |        224       85.17       85.17
        yes |         39       14.83      100.00
------------+-----------------------------------
      Total |        263      100.00

25. Child's     |
metabolic   |
diagnosis   |      Freq.     Percent        Cum.
------------+-----------------------------------
      Leigh |          5        1.90        1.90
   mitochon |          9        3.42        5.32
        OTC |          4        1.52        6.84
        pku |        112       42.59       49.43
        GA1 |          4        1.52       50.95
   homocyst |          3        1.14       52.09
        ppa |          5        1.90       53.99
   cobalami |          3        1.14       55.13
        iva |          1        0.38       55.51
        ga2 |          2        0.76       56.27
   multcomp |          4        1.52       57.79
   complex3 |          2        0.76       58.56
       MCAD |          9        3.42       61.98
         KS |          1        0.38       62.36
   galactos |         26        9.89       72.24
      barth |          1        0.38       72.62
     HMGCoA |          1        0.38       73.00
       msud |         11        4.18       77.19
      MELAS |          2        0.76       77.95
     cytcox |          4        1.52       79.47
   arginase |          1        0.38       79.85
   sanfilip |          1        0.38       80.23
       cdgs |          1        0.38       80.61
     hunter |          2        0.76       81.37
     krabbe |          1        0.38       81.75
     refsum |          1        0.38       82.13
   complex1 |          9        3.42       85.55
        mma |          8        3.04       88.59
      LCHAD |          4        1.52       90.11
   biotinid |          5        1.90       92.02
       faod |          7        2.66       94.68
        ASA |          4        1.52       96.20
   carndefi |          2        0.76       96.96
     trMSUD |          1        0.38       97.34
   fumarase |          1        0.38       97.72
   hyperorn |          1        0.38       98.10
    Gaucher |          1        0.38       98.48
      VLCAD |          1        0.38       98.86
   NKhyperg |          2        0.76       99.62
   Mocofact |          1        0.38      100.00
------------+-----------------------------------
      Total |        263      100.00

26. dx thru nb  |
screen?     |      Freq.     Percent        Cum.
------------+-----------------------------------
         no |        124       47.15       47.15
        yes |        139       52.85      100.00
------------+-----------------------------------
      Total |        263      100.00

27. age at dx if not nbscreen
Variable |     Obs        Mean   Std. Dev.       Min        Max
---------+-----------------------------------------------------
   agedx |     124     21.4254   26.61712          0        132  

28. school      |
status      |      Freq.     Percent        Cum.
------------+-----------------------------------
        N/A |         55       20.91       20.91
   in schoo |        202       76.81       97.72
   home sch |          4        1.52       99.24
   resident |          1        0.38       99.62
   neversch |          1        0.38      100.00
------------+-----------------------------------
      Total |        263      100.00


29. grade level |      Freq.     Percent        Cum.
------------+-----------------------------------
          0 |        102       38.78       38.78
          1 |         21        7.98       46.77
          2 |         16        6.08       52.85
          3 |         15        5.70       58.56
          4 |         19        7.22       65.78
          5 |         14        5.32       71.10
          6 |         17        6.46       77.57
          7 |         16        6.08       83.65
          8 |         12        4.56       88.21
          9 |          6        2.28       90.49
         10 |         11        4.18       94.68
         11 |          7        2.66       97.34
         12 |          6        2.28       99.62
         13 |          1        0.38      100.00
------------+-----------------------------------
      Total |        263      100.00



30. in daycare? |      Freq.     Percent        Cum.
------------+-----------------------------------
         no |        240       91.25       91.25
        yes |         23        8.75      100.00
------------+-----------------------------------
      Total |        263      100.00

31.special diet|
required?   |      Freq.     Percent        Cum.
------------+-----------------------------------
         no |         69       26.24       26.24
        yes |        194       73.76      100.00
------------+-----------------------------------
      Total |        263      100.00

32. medications |
required?   |      Freq.     Percent        Cum.
------------+-----------------------------------
         no |        149       56.65       56.65
        yes |        114       43.35      100.00
------------+-----------------------------------
      Total |        263      100.00

33. Child uses  |
wheelchair? |      Freq.     Percent        Cum.
------------+-----------------------------------
         no |        240       91.25       91.25
        yes |         23        8.75      100.00
------------+-----------------------------------
      Total |        263      100.00

34. child has   |
g-tube?     |      Freq.     Percent        Cum.
------------+-----------------------------------
         no |        227       86.31       86.31
        yes |         36       13.69      100.00
------------+-----------------------------------
      Total |        263      100.00

35. # assistive |
devices     |      Freq.     Percent        Cum.
------------+-----------------------------------
          0 |        202       76.81       76.81
          1 |         34       12.93       89.73
          2 |          9        3.42       93.16
          3 |         10        3.80       96.96
          4 |          3        1.14       98.10
          5 |          3        1.14       99.24
          6 |          2        0.76      100.00
------------+-----------------------------------
      Total |        263      100.00

36. Variable |     Obs        Mean   Std. Dev.       Min        Max
---------+-----------------------------------------------------
  chhlth |     263    4.347909   1.022488          1          5  

37. times child |
hospitalized|      Freq.     Percent        Cum.
------------+-----------------------------------
          0 |        105       39.92       39.92
        1-3 |         72       27.38       67.30
        4-6 |         29       11.03       78.33
        7-9 |         10        3.80       82.13
   10 or mo |         47       17.87      100.00
------------+-----------------------------------
      Total |        263      100.00





38. reasons for |
hospitalizat|
ions        |      Freq.     Percent        Cum.
------------+-----------------------------------
   not appl |        105       39.92       39.92
   unrelate |         45       17.11       57.03
   related  |         75       28.52       85.55
   both rel |         38       14.45      100.00
------------+-----------------------------------
      Total |        263      100.00

39. child       |
requires    |
extra       |
parental c  |      Freq.     Percent        Cum.
------------+-----------------------------------
         no |        105       39.92       39.92
        yes |        158       60.08      100.00
------------+-----------------------------------
      Total |        263      100.00

40.    |     Obs        Mean   Std. Dev.       Min        Max
---------+-----------------------------------------------------
 extrcrn |     263    2.574144   1.561469          1          5  

41. Variable |     Obs        Mean   Std. Dev.       Min        Max
---------+-----------------------------------------------------
 extrcrd |     263    1.712928   1.723852          0          5  

42. Variable |     Obs        Mean   Std. Dev.       Min        Max
---------+-----------------------------------------------------
 hlthwor |     263      2.8327   1.389902          1          5  

43. Variable |     Obs        Mean   Std. Dev.       Min        Max
---------+-----------------------------------------------------
 futrwor |     263    3.281369   1.443832          1          5  

44. # visits to met center
Variable |     Obs        Mean   Std. Dev.       Min        Max
---------+-----------------------------------------------------
 nmetvis |     260         5.1   8.766248          0        100  

45. minutes to met center
Variable |     Obs        Mean   Std. Dev.       Min        Max
---------+-----------------------------------------------------
 tmetvis |     255    64.51373   60.78715          4        600  

Variable |     Obs        Mean   Std. Dev.       Min        Max
---------+-----------------------------------------------------
46.metund |     257    4.638132   .7162901          1          5  

Variable |     Obs        Mean   Std. Dev.       Min        Max
---------+-----------------------------------------------------
47.metenc |     256    4.488281   .9329793          1          5  

Variable |     Obs        Mean   Std. Dev.       Min        Max
---------+-----------------------------------------------------
48.metques |     257    4.536965   .8792282          1          5  

Variable |     Obs        Mean   Std. Dev.       Min        Max
---------+-----------------------------------------------------
49.methom |     257    4.509728   .9524345          1          5  

Variable |     Obs        Mean   Std. Dev.       Min        Max
---------+-----------------------------------------------------
50.metdec |     257    4.696498   .6912592          1          5  

Variable |     Obs        Mean   Std. Dev.       Min        Max
---------+-----------------------------------------------------
51.metplan |     256    4.683594   .7704623          1          5  

Variable |     Obs        Mean   Std. Dev.       Min        Max
---------+-----------------------------------------------------
52. metrx |     256    4.652344   .7671148          1          5  

Variable |     Obs        Mean   Std. Dev.       Min        Max
---------+-----------------------------------------------------
53.metdecq |     257     4.66537   .6881298          1          5  

Variable |     Obs        Mean   Std. Dev.       Min        Max
---------+-----------------------------------------------------
54. metstaf |     256    4.429688   .9345952          1          5  

Variable |     Obs        Mean   Std. Dev.       Min        Max
---------+-----------------------------------------------------
55. metapp |     257    4.303502   1.139365          1          5  

Variable |     Obs        Mean   Std. Dev.       Min        Max
---------+-----------------------------------------------------
56.metsat |     257    4.624514   .7616685          1          5  

Variable |     Obs        Mean   Std. Dev.       Min        Max
---------+-----------------------------------------------------
57. metcarq |     257    4.688716   .7156107          1          5  

Variable |     Obs        Mean   Std. Dev.       Min        Max
---------+-----------------------------------------------------
58.mettot |     256    54.99023   7.618791         18         60  

Variable |     Obs        Mean   Std. Dev.       Min        Max
---------+-----------------------------------------------------
59. npcpvis |     259    6.200772   13.16849          0        150  

Variable |     Obs        Mean   Std. Dev.       Min        Max
---------+-----------------------------------------------------
60.tpcpvis |     251    17.36653   13.77916          2         90  

Variable |     Obs        Mean   Std. Dev.       Min        Max
---------+-----------------------------------------------------
61.pcpund |     246    4.404472   .9302295          1          5  

Variable |     Obs        Mean   Std. Dev.       Min        Max
---------+-----------------------------------------------------
62.pcpenc |     246    4.306911   1.051875          1          5  

Variable |     Obs        Mean   Std. Dev.       Min        Max
---------+-----------------------------------------------------
63.pcpques |     246    4.361789   1.467054          1         20  

Variable |     Obs        Mean   Std. Dev.       Min        Max
---------+-----------------------------------------------------
64.pcphom |     246    4.254065   1.064014          1          5  

Variable |     Obs        Mean   Std. Dev.       Min        Max
---------+-----------------------------------------------------
65.pcpdec |     246    4.630081    .764886          1          5  

Variable |     Obs        Mean   Std. Dev.       Min        Max
---------+-----------------------------------------------------
66. pcpplan |     246    4.638211    .763453          1          5  

Variable |     Obs        Mean   Std. Dev.       Min        Max
---------+-----------------------------------------------------
67. pcprx |     246    4.560976   .7521001          1          5  

Variable |     Obs        Mean   Std. Dev.       Min        Max
---------+-----------------------------------------------------
68.pcpdecq |     246    4.565041   .7940065          1          5  

Variable |     Obs        Mean   Std. Dev.       Min        Max
---------+-----------------------------------------------------
69.pcpstaf |     246    4.341463   .9883341          1          5  

Variable |     Obs        Mean   Std. Dev.       Min        Max
---------+-----------------------------------------------------
70.pcpapp |     246    4.235772   1.084821          1          5  

Variable |     Obs        Mean   Std. Dev.       Min        Max
---------+-----------------------------------------------------
71.pcpsat |     246     4.49187   .8156223          1          5  

Variable |     Obs        Mean   Std. Dev.       Min        Max
---------+-----------------------------------------------------
72. pcpcarq |     246    4.554878   .7409568          2          5  

Variable |     Obs        Mean   Std. Dev.       Min        Max
---------+-----------------------------------------------------
73.pcptot |     246    53.34959    8.57891         20         60  

Variable |     Obs        Mean   Std. Dev.       Min        Max
---------+-----------------------------------------------------
 74. nspecs |     262    1.007634   1.625921          0         14  

75. specialist  |
understands |
met cond    |      Freq.     Percent        Cum.
------------+-----------------------------------
        N/A |        136       51.91       51.91
        yes |         86       32.82       84.73
         no |         20        7.63       92.37
    partial |         16        6.11       98.47
   don'tkno |          4        1.53      100.00
------------+-----------------------------------
      Total |        262      100.00

76. physical    |
ther, times |
per week    |      Freq.     Percent        Cum.
------------+-----------------------------------
          0 |        196       74.52       74.52
         .5 |          5        1.90       76.43
          1 |         18        6.84       83.27
        1.5 |          1        0.38       83.65
          2 |         24        9.13       92.78
          3 |         13        4.94       97.72
          4 |          1        0.38       98.10
          5 |          4        1.52       99.62
          7 |          1        0.38      100.00
------------+-----------------------------------
      Total |        263      100.00

77.physical    |
ther,       |
provided    |
where?      |      Freq.     Percent        Cum.
------------+-----------------------------------
        N/A |        195       74.14       74.14
        N/A |          1        0.38       74.52
       home |         15        5.70       80.23
     school |         41       15.59       95.82
     center |          3        1.14       96.96
   multiple |          7        2.66       99.62
   inpatien |          1        0.38      100.00
------------+-----------------------------------
      Total |        263      100.00








78.occ ther,   |
times per wk|      Freq.     Percent        Cum.
------------+-----------------------------------
          0 |        188       71.48       71.48
         .1 |          2        0.76       72.24
        .25 |          2        0.76       73.00
         .5 |          3        1.14       74.14
          1 |         26        9.89       84.03
        1.5 |          1        0.38       84.41
          2 |         22        8.37       92.78
          3 |         12        4.56       97.34
          4 |          1        0.38       97.72
          5 |          5        1.90       99.62
          7 |          1        0.38      100.00
------------+-----------------------------------
      Total |        263      100.00

79.occ ther,   |
provided    |
where?      |      Freq.     Percent        Cum.
------------+-----------------------------------
        N/A |        189       71.86       71.86
       home |         11        4.18       76.05
     school |         50       19.01       95.06
     center |          7        2.66       97.72
   multiple |          5        1.90       99.62
   inpatien |          1        0.38      100.00
------------+-----------------------------------
      Total |        263      100.00

80. speech ther,|
times per wk|      Freq.     Percent        Cum.
------------+-----------------------------------
          0 |        187       71.10       71.10
         .2 |          1        0.38       71.48
         .5 |          2        0.76       72.24
          1 |         20        7.60       79.85
          2 |         27       10.27       90.11
          3 |         16        6.08       96.20
          4 |          2        0.76       96.96
          5 |          8        3.04      100.00
------------+-----------------------------------
      Total |        263      100.00

81.speech ther,|
provided    |
where?      |      Freq.     Percent        Cum.
------------+-----------------------------------
        N/A |        187       71.10       71.10
       home |         10        3.80       74.90
     school |         52       19.77       94.68
     center |          6        2.28       96.96
   multiple |          7        2.66       99.62
   inpatien |          1        0.38      100.00
------------+-----------------------------------
      Total |        263      100.00

82. special     |
education   |      Freq.     Percent        Cum.
------------+-----------------------------------
         no |        172       65.65       65.65
        yes |         90       34.35      100.00
------------+-----------------------------------
      Total |        262      100.00







83. home nsg,   |
hospice,    |
hha; days/wk|      Freq.     Percent        Cum.
------------+-----------------------------------
          0 |        224       85.50       85.50
         .2 |          1        0.38       85.88
         .5 |          1        0.38       86.26
          1 |          9        3.44       89.69
          2 |          2        0.76       90.46
          3 |          5        1.91       92.37
          4 |          2        0.76       93.13
          5 |         16        6.11       99.24
          6 |          1        0.38       99.62
          7 |          1        0.38      100.00
------------+-----------------------------------
      Total |        262      100.00

84. other       |
services    |      Freq.     Percent        Cum.
------------+-----------------------------------
       none |        161       61.22       61.22
   nutritio |         53       20.15       81.37
   early in |         15        5.70       87.07
      psych |         14        5.32       92.40
   multiple |         14        5.32       97.72
      other |          3        1.14       98.86
     vision |          1        0.38       99.24
       FITP |          2        0.76      100.00
------------+-----------------------------------
      Total |        263      100.00

85. DPH provides|
support?    |      Freq.     Percent        Cum.
------------+-----------------------------------
         no |        228       86.69       86.69
        yes |         35       13.31      100.00
------------+-----------------------------------
      Total |        263      100.00


86.DMR provides|
services?   |      Freq.     Percent        Cum.
------------+-----------------------------------
         no |        241       91.63       91.63
        yes |         22        8.37      100.00
------------+-----------------------------------
      Total |        263      100.00

87. other       |
agencies    |
providing   |
suppor      |      Freq.     Percent        Cum.
------------+-----------------------------------
       none |        204       77.57       77.57
        VNA |          8        3.04       80.61
    schlsys |         14        5.32       85.93
   interimh |          2        0.76       86.69
   United D |          1        0.38       87.07
        SSI |          7        2.66       89.73
      other |         10        3.80       93.54
   Chsphlth |          5        1.90       95.44
   blindser |          3        1.14       96.58
        WIC |          3        1.14       97.72
        ARC |          3        1.14       98.86
       DCFS |          1        0.38       99.24
        DSS |          1        0.38       99.62
   Shriner' |          1        0.38      100.00
------------+-----------------------------------
      Total |        263      100.00


88. name of     |
privately   |
funded      |
insura      |      Freq.     Percent        Cum.
------------+-----------------------------------
       none |         53       20.15       20.15
   BCBSHMOB |         66       25.10       45.25
     HlthNE |          2        0.76       46.01
      Tufts |         33       12.55       58.56
   HarvPilg |         27       10.27       68.82
   other/no |         37       14.07       82.89
    Pioneer |          1        0.38       83.27
   United H |          7        2.66       85.93
   Neighbor |          1        0.38       86.31
   Healthso |          4        1.52       87.83
      UMass |          1        0.38       88.21
      Aetna |          8        3.04       91.25
    Champus |          5        1.90       93.16
   Partners |          1        0.38       93.54
   prudenti |          2        0.76       94.30
     Kaiser |          1        0.38       94.68
   Healthma |          2        0.76       95.44
   tricarep |          1        0.38       95.82
   lifespan |          1        0.38       96.20
   mastrhlt |          1        0.38       96.58
        MVP |          1        0.38       96.96
        PHS |          8        3.04      100.00
------------+-----------------------------------
      Total |        263      100.00

89. name of     |
publicly    |
funded      |
insuran     |      Freq.     Percent        Cum.
------------+-----------------------------------
       none |        181       68.82       68.82
   medicaid |         29       11.03       79.85
   MassHlth |         36       13.69       93.54
   KMulliga |          3        1.14       94.68
   KBeckett |          2        0.76       95.44
    title19 |          1        0.38       95.82
   govt hos |          1        0.38       96.20
   ritecare |          5        1.90       98.10
        DCF |          1        0.38       98.48
   neighbhl |          2        0.76       99.24
      other |          2        0.76      100.00
------------+-----------------------------------
      Total |        263      100.00


Variable |     Obs        Mean   Std. Dev.       Min        Max
---------+-----------------------------------------------------
90.pocket |     263    69.67757   192.1321          0       2500  

Variable |     Obs        Mean   Std. Dev.       Min        Max
---------+-----------------------------------------------------
91.hrscore |     263    2.897338   1.112435          1          5  

Variable |     Obs        Mean   Std. Dev.       Min        Max
---------+-----------------------------------------------------
92.ISPtot |     263    33.90494   15.80857         11         77  

Variable |     Obs        Mean   Std. Dev.       Min        Max
---------+-----------------------------------------------------
93.parhlth |     263    4.117871   .9191475          1          5  






94. other       |
children    |
med/dev     |
prob?       |      Freq.     Percent        Cum.
------------+-----------------------------------
         no |        190       72.24       72.24
        yes |         73       27.76      100.00
------------+-----------------------------------
      Total |        263      100.00

95. ever had    |
child who   |
died?       |      Freq.     Percent        Cum.
------------+-----------------------------------
         no |        249       94.68       94.68
        yes |         14        5.32      100.00
------------+-----------------------------------
      Total |        263      100.00

96.experienced |
pregnancy   |
loss?       |      Freq.     Percent        Cum.
------------+-----------------------------------
         no |        176       66.92       66.92
        yes |         87       33.08      100.00
------------+-----------------------------------
      Total |        263      100.00

97.experienced |
infertility?|      Freq.     Percent        Cum.
------------+-----------------------------------
         no |        224       85.17       85.17
        yes |         38       14.45       99.62
          5 |          1        0.38      100.00
------------+-----------------------------------
      Total |        263      100.00


Variable |     Obs        Mean   Std. Dev.       Min        Max
---------+-----------------------------------------------------
98. socsupn |     263    5.258555   4.176643          0         21  


Variable |     Obs        Mean   Std. Dev.       Min        Max
---------+-----------------------------------------------------
 99. socsups |     263    4.131179   1.166034          1          5  

100. parent ed   |
plans       |
affected    |      Freq.     Percent        Cum.
------------+-----------------------------------
   not at a |        151       57.41       57.41
   not sure |          3        1.14       58.56
   a little |         59       22.43       80.99
      a lot |         50       19.01      100.00
------------+-----------------------------------
      Total |        263      100.00

101.parent      |
housing     |
affected    |      Freq.     Percent        Cum.
------------+-----------------------------------
   not at a |        184       69.96       69.96
   not sure |          4        1.52       71.48
   a little |         41       15.59       87.07
      a lot |         34       12.93      100.00
------------+-----------------------------------
      Total |        263      100.00



102.parent work |
affected    |      Freq.     Percent        Cum.
------------+-----------------------------------
   not at a |        108       41.06       41.06
   not sure |          4        1.52       42.59
   a little |         63       23.95       66.54
      a lot |         88       33.46      100.00
------------+-----------------------------------
      Total |        263      100.00

103. parent      |
finances    |
affected    |      Freq.     Percent        Cum.
------------+-----------------------------------
   not at a |        115       43.73       43.73
   not sure |          1        0.38       44.11
   a little |         74       28.14       72.24
      a lot |         73       27.76      100.00
------------+-----------------------------------
      Total |        263      100.00

104.parent      |
insurance   |
affected    |      Freq.     Percent        Cum.
------------+-----------------------------------
   not at a |        131       49.81       49.81
   not sure |          5        1.90       51.71
   a little |         47       17.87       69.58
      a lot |         80       30.42      100.00
------------+-----------------------------------
      Total |        263      100.00

105. paren       |
marriage    |
affected    |      Freq.     Percent        Cum.
------------+-----------------------------------
   not at a |        123       46.77       46.77
   not sure |         16        6.08       52.85
   a little |         59       22.43       75.29
      a lot |         65       24.71      100.00
------------+-----------------------------------
      Total |        263      100.00

106.parent      |
relationship|
s affected  |      Freq.     Percent        Cum.
------------+-----------------------------------
   not at a |        128       48.67       48.67
   not sure |          2        0.76       49.43
   a little |         66       25.10       74.52
      a lot |         67       25.48      100.00
------------+-----------------------------------
      Total |        263      100.00


107.plans for   |
more        |
children    |
affecte     |      Freq.     Percent        Cum.
------------+-----------------------------------
   not at a |        120       45.63       45.63
   not sure |         12        4.56       50.19
   a little |         36       13.69       63.88
      a lot |         95       36.12      100.00
------------+-----------------------------------
      Total |        263      100.00

Variable |     Obs        Mean   Std. Dev.       Min        Max
---------+-----------------------------------------------------
108.effectsn |     263    3.844106   2.601092          0          8  

109.effect on   |
future      |
reproduction|      Freq.     Percent        Cum.
------------+-----------------------------------
   no effec |        151       57.41       57.41
      limit |        107       40.68       98.10
   n/a: non |          5        1.90      100.00
------------+-----------------------------------
      Total |        263      100.00

110. genetic     |
counseling  |
at met ctr? |      Freq.     Percent        Cum.
------------+-----------------------------------
      noone |         28       10.65       10.65
         MD |        204       77.57       88.21
   genetic  |         10        3.80       92.02
      nurse |          1        0.38       92.40
      other |          6        2.28       94.68
        N/A |          2        0.76       95.44
   multiple |          6        2.28       97.72
     unsure |          6        2.28      100.00
------------+-----------------------------------
      Total |        263      100.00

111.counseling  |
other than  |
met ctr     |      Freq.     Percent        Cum.
------------+-----------------------------------
      noone |        199       75.67       75.67
         MD |         23        8.75       84.41
   genetic  |          9        3.42       87.83
      nurse |          2        0.76       88.59
      other |         22        8.37       96.96
        N/A |          3        1.14       98.10
   multiple |          3        1.14       99.24
     unsure |          2        0.76      100.00
------------+-----------------------------------
      Total |        263      100.00

112.recalls     |
specific    |
recurrence  |
ris         |      Freq.     Percent        Cum.
------------+-----------------------------------
         no |         36       13.69       13.69
        yes |        202       76.81       90.49
   not sure |         21        7.98       98.48
        N/A |          4        1.52      100.00
------------+-----------------------------------
      Total |        263      100.00

113.ever offered|
prenatal dx?|      Freq.     Percent        Cum.
------------+-----------------------------------
         no |        183       69.58       69.58
        yes |         66       25.10       94.68
        N/A |          8        3.04       97.72
     unsure |          6        2.28      100.00
------------+-----------------------------------
      Total |        263      100.00

114.ever used   |
pnd for met |
condition   |      Freq.     Percent        Cum.
------------+-----------------------------------
         no |        236       89.73       89.73
        yes |         18        6.84       96.58
        N/A |          9        3.42      100.00
------------+-----------------------------------
      Total |        263      100.00

115.would       |
consider    |
using pnd?  |      Freq.     Percent        Cum.
------------+-----------------------------------
         no |         85       32.32       32.32
        yes |        140       53.23       85.55
     unsure |         30       11.41       96.96
        N/A |          8        3.04      100.00
------------+-----------------------------------
      Total |        263      100.00

116. would choose|
termination |
option      |      Freq.     Percent        Cum.
------------+-----------------------------------
   noterm/n |        230       87.45       87.45
   terminat |         26        9.89       97.34
        N/A |          7        2.66      100.00
------------+-----------------------------------
      Total |        263      100.00


117.employment  |
cut back or |
quit        |      Freq.     Percent        Cum.
------------+-----------------------------------
   no effec |        187       71.10       71.10
       quit |         59       22.43       93.54
   cut back |         16        6.08       99.62
      fired |          1        0.38      100.00
------------+-----------------------------------
      Total |        263      100.00

Variable |         Obs        Mean   Std. Dev.       Min        Max
---------+-----------------------------------------------------
118. jobmiss |     258    4.806202   9.859383          0         80  

Variable |        Obs        Mean   Std. Dev.       Min        Max
---------+-----------------------------------------------------
119.parknow |     263    4.064639   .8558312          1          5  

Variable |     Obs        Mean   Std. Dev.       Min        Max
---------+-----------------------------------------------------
120.parcap |     263    4.653992   .6224591          2          5  


Variable |     Obs        Mean   Std. Dev.       Min        Max
---------+-----------------------------------------------------
121. vinelnd |     263    83.51711   28.23306         20        146  

Variable |     Obs        Mean   Std. Dev.       Min        Max
---------+-----------------------------------------------------
122.vncomm |     263    84.53232   27.13505         20        138  

Variable |     Obs        Mean   Std. Dev.       Min        Max
---------+-----------------------------------------------------
123.vndlylv |     263    82.52471   28.93119         20        143  

Variable |     Obs        Mean   Std. Dev.       Min        Max
---------+-----------------------------------------------------
124.vnsoc |     262    88.87786    24.4128         20        134  

Variable |     Obs        Mean   Std. Dev.       Min        Max
---------+-----------------------------------------------------
125.vnmotor |      92    87.54348   27.38629         20        140  

126-161 psi1-psi36 (data omitted for this document)




Variable |     Obs        Mean   Std. Dev.       Min        Max
---------+-----------------------------------------------------
162.psitot |     263    75.58935   25.39487         36        155  

163. difficulty  |
answering   |
any items?  |      Freq.     Percent        Cum.
------------+-----------------------------------
         no |        257       97.72       97.72
        yes |          6        2.28      100.00
------------+-----------------------------------
      Total |        263      100.00

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