Privacy Statement
Terms of Use
Disclaimer
Web Links

Privacy Statement
This site is intended to provide general and educational information about metabolic disorders and newborn screening and matters pertaining to these two areas. A concerned effort is made to share information that is to be used to increase the viewer's knowledge and promote understanding. It is not intended to, nor does it, constitute medical or other advice. Readers are warned not to take any action with regard to medical treatment based upon the information presented on this website without first consulting a physician. The New England Consortium and its officers, directors, volunteers, employees, Web site operators and sponsors (hereafter referenced as the Consortium) does not promote or recommend any treatment, therapy, institution or health care plan.

The multimedia images and video used on this website are intended for educational purposes ONLY.  The New England Consortium cannot control how the recipient uses or shares this information, and laws protecting its confidentiality on the website may or may not protect the information once it has been disclosed to the recipient.

MEDICAL ADVICE IS NOT GIVEN OR PROVIDED ON THIS WEB SITE. SUCH INFORMATION WHICH MAY BE MEDICAL IN NATURE IS PRESENTED AS INFORMATION ONLY. USERS PURSUING ANY TREATMENT OR COURSE OF ACTION MUST CONSULT A MEDICAL PRACTITIONER PROPERLY LICENSED IN THE USER'S JURISDICTION. ULTIMATELY, THE COURSE OF ACTION IN TREATING A GIVEN PATIENT MUST BE INDIVIDUALIZED AFTER A THOROUGH DISCUSSION WITH THE PATIENT'S PHYSICIAN(S). NOTHING CONTAINED, EXPRESSLY OR IMPLIED, AT THIS SITE IS INTENDED OR SHALL BE CONSTRUED AS MEDICAL OR OTHER PROFESSIONAL ADVICE BY THE CONSORTIUM.

Terms of Use
Interactive features on this website provide opportunities for users to exchange information. User-generated information can be used to form a consensus or aggregate of opinions to present relevant information for the benefit of the general audience. The Consortium does not regularly monitor, screen or approve user information. However, the host Web site reserves the right to deny or remove any such information deemed libelous or offensive to others. Guidelines are given that are intended to promote interactivity while observing the highest level of proper conduct and Internet etiquette (see Guidelines). To permit meaningful discourse, all participants must recognize that a free exchange does not validate the integrity or accuracy of user-generated information. As a condition of use, all users consent to an open debate of the subject matter, and agree that no claims will be brought against any other participant as a result of the use of the features offered in this website.

The content of this website must not be reproduced, or derivative works prepared based upon, distributed or displayed information without first obtaining the written permission of the New England Consortium. Materials must not be used in any unauthorized manner.

Disclaimer
You agree that you will hold harmless the Consortium from all claims arising out of or related to your access or use of, or your inability to access or use, this Web site or the information contained in this Web site or other Web sites to which it is linked. While we try to maintain only current and accurate information, we disclaim any implied warranty or representation about its accuracy or completeness, or appropriateness for a particular purpose. As the recipient of this information, you assume full responsibility for using the information at this Web site, and you understand and agree that the Consortium is neither responsible nor liable for any claim, loss, or damage resulting from its use. Therefore, the use of any information obtained from this Web site shall be at the sole risk of the user, based upon their independently exercised judgment.

The CONSORTIUM SHALL NOT BE LIABLE TO ANY USER OR THIRD PARTY AS A RESULT OF THE EXCHANGE OF ANY INFORMATION, for a claim of any kind, including defamation, disclosure of confidential information, negligence, or otherwise, despite where or how the claim arises. The posting of any information on this Web site shall be at the sole risk of the user, based upon their independently exercised judgment. All users generating information on the Web site agree to indemnify and hold the Consortium harmless, from any claim, loss or damages arising from content placed on the Web site. The views and opinions of participants do not necessarily state or reflect those of Consortium.

The mention of specific products or services at this site does not constitute or imply a recommendation or endorsement by the Consortium, unless it is explicitly stated.

Your acceptance of these terms and your agreement to be bound by them is a requirement of and a prerequisite of your access to and use of this website.

Web Links
The Consortium provides links to other Web sites that are not under its control. These links are provided for convenience of reference only and are not intended as an endorsement by the Consortium. The Consortium does not warrant against human and machine errors, omissions, delays, interruptions or losses, including loss of data nor does the Consortium make warrantee that Web sites linked will be free of infection by viruses or other harmful mechanisms that manifest contaminating or destructive properties. Users of the Web site are responsible for (1) implementing and maintaining adequate procedures and checkpoints to satisfy their particular requirements for accuracy of data input and output and (2) maintaining a means external to the Web site for the reconstruction of any lost data. The Consortium is not accountable for any loss of data resulting from system and network outages, file corruption, deletion or cancellation of services, or any other reasons.

Most Web sites state their own privacy policies, and should be independently observed.