Resource Links
HomeScients and PhysiciansPatients and Families
 

 

National

American Academy of Pediatrics

Genetic and Rare Diseases Information Center

MUMS: National Parent-to-Parent Network

National Center for Learning Disabilities

National Parent Netwrok on Disabilities (NPND)

National Society of Genetic Counselors

The ARC of the United States National Headquarters Office

National Coalition for PKU Allied Disorders

National PKU News

NORD: National Organization for Rare Disorders

Organic Acidemia Association http://www.oaanews.org, http://www.pafoundation.com

The Propionic Acidemia Foundation

NicollsADC Presents: Phenylketonuria

Metabolic Information Network

The Catalyst Center

The Arc of Washington State

Other States

Colorado Department of Public Health and Environment

Texas PKU Connections

PARENTS: Parents as Resources Engaged in Networking and Training (Alaska)

Idaho Parents Unlimited

PLUK: Parents, Let's Unite for Kids (Montana)

Oregon: Coalition in Oregon for Parent Education (COPE)

Washington: Washington PAVE

Washington State Parent-to-Parent Program

 

 

 

 

 

 

 

 

 

 

 

 

New England

New England Regional Genetics Group

Dept of Metabolism, Pediatric Services(NEMC)

Dept of Metabolic Disorders at MassGeneral

New Hampshire Family Voices

NECPADThe New England Connection for PKU and Allied Disorder


International

Genetic Alliance, Inc.

PKU Argentina

 

Groups

MSN Tyrosinemia Community Homepage

PKU Penpal

LISTSERV

PKU Support Group at LISTSERV

 

Newborn Screening

Save Babies Through Screening