The following files can be downloaded as either word (.doc ) documents or as (.pdf ) files (except the presentation, which is a PowerPoint file). In addition, they may either be downloaded as an entire section or just as single forms and documents. Please use the "Contact Us" link to let the staff at Children's Hospital, Boston know if you are having trouble accessing the files. Thanks

		Download Entire Training Guide
		Training Manual Cover
		Main Table of Contents
		Section One: Contact Information
		a. Section One Table of Contents
		b. Description of the Resource Mother's Program
		c. Organizational Chart
		d. Coordinator's Contact Information
		e. Resource Mothers Contact Information
		f . Communicating with the Coordinating Center

		Section Two: Background Readings
		a. Section Two Table of Contents

Because published work is copyrighted, these articles cannot be posted on the web for downloading. If you cannot find them through your local clinic, please contact Children's Hospital, Boston and we will mail them to you.

		Section Three: Treatment Protocol
		a. Section Three Table of Contents
		b. Resource Mother's Schedule of Assessment
		c. Maternal PKU Treatment Plan Table of Contents (formerly Appendix 2)
		d. Maternal PKU Treatment Plan
		e. Maternal PKU Treatment Plan (including Resource Mothers)
		f. Assessing the Need for and Benefits of Treating mPKU
		g. Resource Mothers Protocol
		h. Possible Factors Leading to High Phenylalanine Levels in Maternal PKU
		i. Optional Questionnaires for Resource Mother's Use Table of Contents
		j. How Am I Doing Now
		k. Cooking Experience
		l. Diet Goals Worksheet
		m. Initial Diet Checklist
		n. Assessing Food Preferences
		o. Module Assessment

		Section Four: Diet Overview
		a. A Diet Overview

		Section Five: Skills
		a. Section Five Table of Contents
		b. The Resource Mother's Role
		c. Communication and Listening Skills
		d. Listening PowerPoint Presentation
		e. Confidentiality
		f. Home Visitation

		Section Six: Forms
		a. Section Six Table of Contents
		b. Case Information
		c. Resource Mother's Log
		d. Communication Form
		e. Request for Payment
		f. Psychosocial Questionnaires Introduction and Table of Contents
		g. How Do You Feel Form
		h. Knowledge Test
		i. Social Support Questionnaire
		j. Attitude About Treatment Questionnaire
		k. Home Organizational Chart
		l. Life Stress Questionnaire
		m. Opinion Questionnaire