The following files can be downloaded as either word (.doc ) documents or as (.pdf ) files (except the presentation, which is a PowerPoint file). In addition, they may either be downloaded as an entire section or just as single forms and documents. Please use the "Contact Us" link to let the staff at Children's Hospital, Boston know if you are having trouble accessing the files. Thanks

Entire Training Guide(.doc) Entire Training Guide(.pdf)
Download Entire Training Guide
 
Cover(.doc) Cover(.pdf)
Training Manual Cover
 
Main Table of Contents(.doc) Main Table of Contents(.pdf)
Main Table of Contents
 
Section 1(.doc) Section 1(.pdf)
Section One: Contact Information
 
table of contents(.doc) table of contents(.doc)
  a. Section One Table of Contents
 
Description of Program(.doc) Description of Program(.pdf)
  b. Description of the Resource Mother's Program
 
Organizational Chart(.doc) Organizational Chart(.pdf)
  c. Organizational Chart
 
Coordinators Contact Info(.doc) Coordinators Contact Info(.pdf)
  d. Coordinator's Contact Information
 
RM Contact Info(.doc) RM Contact Info(.pdf)
  e. Resource Mothers Contact Information
 
Communicating(.doc) Communicating(.pdf)
  f . Communicating with the Coordinating Center

Section 2(.doc) Section 2(.pdf)
Section Two: Background Readings
 
Section 2(.doc) Section 2(.pdf)
  a. Section Two Table of Contents

Because published work is copyrighted, these articles cannot be posted on the web for downloading. If you cannot find them through your local clinic, please contact Children's Hospital, Boston and we will mail them to you.

Section 3(.doc) Section 3(.pdf)
Section Three: Treatment Protocol
 
Table of Contents(.doc) Table of Contents(.pdf)
  a. Section Three Table of Contents
 
Schedule of Assessment(.doc) Schedule of Assessment(.pdf)
  b. Resource Mother's Schedule of Assessment
 
Maternal PKU Treatment Plan TOC(.doc) Maternal PKU Treatment Plan TOC(.pdf)
  c. Maternal PKU Treatment Plan Table of Contents (formerly Appendix 2)
 
Maternal PKU Treatment Plan(.doc) Maternal PKU Treatment Plan(.pdf)
  d. Maternal PKU Treatment Plan
 
Maternal PKU Treatment Plan including RM(.doc) Maternal PKU Treatment Plan including RM(.pdf)
  e. Maternal PKU Treatment Plan (including Resource Mothers)
 
Assessing Needs(.doc) Assessing Needs(.pdf)
   f. Assessing the Need for and Benefits of Treating mPKU
 
Resource Mother Protocol(.doc) Resource Mothers Protocol(.pdf)
  g. Resource Mothers Protocol
 
Possible Factors(.doc) Possible factors(.pdf)
  h. Possible Factors Leading to High Phenylalanine Levels in Maternal PKU
 
Optional Questionairre(.doc) Optional Questionairre(.pdf)
  i. Optional Questionnaires for Resource Mother's Use Table of Contents
 
How am I doing now(.doc) how am I doing now(.pdf)
   j. How Am I Doing Now
 
Cooking Experience(.doc) Cooking Experience(.pdf)
  k. Cooking Experience
 
Diet goals worksheet(.doc) Diet goals worksheet(.pdf)
  l. Diet Goals Worksheet
 
Initial diet checklist(.doc) initial diet checklist(.pdf)
  m. Initial Diet Checklist
 
Assessing food pref(.doc) Assessing food pref(.pdf)
  n. Assessing Food Preferences
 
Module assessment(.doc) Module Assessment(.pdf)
  o. Module Assessment
Section 4(.doc) Section 4(.pdf)
Section Four: Diet Overview
 
Section 4(.doc) Section 4(.pdf)
  a. A Diet Overview
Section 5(.doc) Section 5(.pdf)
Section Five: Skills
 
Table of contents(.doc) Table of contents(.pdf)
  a. Section Five Table of Contents
 
Resource Mothers Role(.doc) Resource Mothers Role(.pdf)
  b. The Resource Mother's Role
 
Communication(.doc) Communication(.pdf)
  c. Communication and Listening Skills
 
  d. Listening PowerPoint Presentation
 
Confidentiality(.doc) Confidentiality(.pdf)
  e. Confidentiality
 
Home visitation(.doc) Home visitation(.pdf)
  f. Home Visitation
Section 6(.doc) Section 6(.pdf)
Section Six: Forms
 
Table of contents(.doc) Table of contents(.pdf)
  a. Section Six Table of Contents
 
Case info(.doc) Case info(.pdf)
  b. Case Information
 
Resource Mothers Log(.doc) Resource Mothers Log(.pdf)
  c. Resource Mother's Log
 
Communication Form(.doc) Communication Form(.pdf)
  d. Communication Form
 
Request for payment(.doc) Request for Payment(.pdf)
  e. Request for Payment
 
Psychosocial Questionairre(.doc) Psychosocial Questionairre(.pdf)
   f. Psychosocial Questionnaires Introduction and Table of Contents
 
How do you feel(.doc) How do you feel(.pdf)
  g. How Do You Feel Form
 
Knowledge test(.doc) knowledge test(.pdf)
  h. Knowledge Test
 
Social support questionairre(.doc) Social support questionairre(.pdf)
  i. Social Support Questionnaire
 
Attitude about treatment questionairre(.doc) Attitude about treatment questionairre(.pdf)
  j. Attitude About Treatment Questionnaire
 
Hoem organizational chart(.doc) Home organizational chart(.pdf)
  k. Home Organizational Chart
 
Lide stress questionairre(.doc) Life stress questionairre(.pdf)
  l. Life Stress Questionnaire
 
Opinion questionairre(.doc) Opinion questionairre(.pdf)
  m. Opinion Questionnaire