The following files can be downloaded as either word (Entire Training Guide(.doc).doc) documents or as (Entire Training Guide(.pdf)pdf) files. In addition, they may either be downloaded as an entire section or just as single forms and documents. Please use the "Contact Us" link to let the staff at Children's Hospital, Boston know if you are having trouble accessing the files. Thanks!

Entire Manual(.doc) Entire Manual(.pdf)
Download Entire Manual  
 
Cover(.doc) Cover(.pdf)
Coordinators Manual Cover
Main Table of Contents(.doc) Main Table of Contents(.pdf)
Main Table of Contents
Overview(.doc) Overview(.pdf)
Overview
 
Letter of Understanding(.doc) Letter of Understanding(.doc)
  a. Letter of Understanding
 
Checklist(.doc) Checklist(.pdf)
  b. Coordinator Responisibility Checklist

 

Section 1(.doc) Section 1(.pdf)
Section 1: Contact Information
 
Table of Contents(.doc) Table of Contents(.pdf)
  a. Section One Table of Contents
 
Organizational Chart(.doc) Organizational Chart(.pdf)
  b. Organizational Chart
 
RM Contact Info(.doc) RM Contact Info(.pdf)
  c. Resource Mothers Contact Information
 
Coord Contact Info(.doc) Coord Contact Info(.doc)
  d. Coordinators Contact Information
 
Communicating with Center(.doc) Communicating with Center(.pdf)
  e. Communicating with the Coordinating Center

 

Section 2(.doc) Section 2(.pdf)
Section 2: Enrollment Procedures
 
Table of Contents(.doc) Table of Contents(.pdf)
  a. Section Two Table of Contents
 
Eligibility(.doc) Eligibility(.pdf)
  b. Eligibility and Informed Consent
 
Treatment Plan with RM(.doc) Treatment Plan with RM(.pdf)
  c. Treatment Plan with a Resource Mother
 
Treatment Plan without RM(.doc) Treatment Plan without RM(.pdf)
  d. Treatment Plan without a Resource Mother
 
Randomization(.doc) Randomization(.doc)
  e. Randomization and Assignment of a Resource Mother

Section 3(.doc) Section 3(.pdf)
Section 3: Data Collection
 
Table of Contents(.doc) Table of Contents(.pdf)
  a. Section Three Table of Contents
 
Data Collection Sched(.doc) Data Collection Sched(.pdf)
  b. Data Collection Schedule
 
Request for Payment(.doc) Request for Payment(.pdf)
  c. Request for Payment (Testing)
 
Sample Letter to Mother(.doc) Sample Letter to Mother(.doc)
  d. Sample Letter to Mother Regarding Testing
 
Sample Letter to Psychologist(.doc) Sample Letter to Psychologist(.pdf)
  e. Sample Letter to Psychologist Regarding Testing
 
Filling out form(.doc) Filling out form(.pdf)
  f. Filling Out Forms Online
 
Hard copies of forms(.doc) Hard copies of forms(.pdf)
  g. Hard Copies of Forms
 
registration and background(.doc) registration and background(.pdf)
  h. Registration and Background
 
Blood Phenylalanine Log(.doc) Blood Phenylalanine Log(.pdf)
  i. Blood Phenylalanine Log
 
Nutrition Asessment(.doc) Nutrition Assessment(.pdf)
  j. Nutrition Assessment
 
Weight record(.doc) weight record(.pdf)
  k. Weight Record
 
Appointments(.doc) Appointments(.pdf)
  l. Appointments
 
Outcome(.doc) Outcome(.pdf)
  m. Outcome
 
Newborn Pediatric Eval(.doc) Newborn Pediatric Eval(.pdf)
  n. Newborn Pediatric Evaluation
 
Offspring 1 yr eval(.doc) Offspring 1 yr eval(.pdf)
  o. Offspring One-Year Evaluation
 
Offspring medical and support(.doc) Offspring medical and support(.pdf)
  p. Offspring Medical and Support Services
 
Rm contact log(.doc) RM contact log(.pdf)
  q. Resource Mother Contact Log
 
Pychosocial Questionnaire(.doc) Pychosocial Questionnaire(.pdf)
  r. Psychosocial Questionnaires
 
Social support Questionnaire(.doc) social support Questionnaire(.pdf)
  s. Social Support Questionnaire
 
Knowledge of Maternal PKU(.doc) Knowledge of Maternal PKU(.pdf)
  t. Knowledge of Maternal PKU
 
how do you feel(.doc) how do you feel(.pdf)
  u. How Do You Feel About Yourself
 
Opinion questionnaire(.doc) opinion questionnaire(.pdf)
  v. Opinion Questionnaire
 
Home org scale(.doc) Home org scale(.pdf)
  w. Home Organization Scale
 
life stress questionnaire(.doc) life stress questionnaire(.pdf)
  x. Life Stress Questionnaire
 
Attitude about treatment(.doc) Attitude about treatment(.pdf)
  y. Attitude About Treatment

 

Sec 4(.doc) Sec 4(.pdf)
Section 4: Other Information for Coordinators
 
table of contents(.doc) table of contents(.pdf)
  a. Section Four Table of Contents
 
Pychological testing(.doc) Pychological testing(.pdf)
  b. Psychological Testing
 
Supervision of RM(.doc) Supervision of RM(.pdf)
  c. Supervision of Resource Mothers

 

Sec 5(.doc) Sec 5(.pdf)
Section 5: Packet for the Resource Mothers
 
table of contents(.doc) table of contents(.pdf)
  a. Section Five Table of Contents
 
case info form(.doc) case info form(.pdf)
  b. Case Information Form
 
RM visits log(.doc) RM visits log(.pdf)
  c. Resource Mother's Visit Log
 
RM visit summary(.doc) RM visit summary(.pdf)
  d. Resource Mother's Visit Summary
 
Request for payment(.doc) request for payment(.pdf)
  e. Request for Payment
 
optional questionnaire(.doc) optional questionnaire(.pdf)
  f. Optional Questionnaires
 
how am I doing now(.doc) How am I doing now(.pdf)
  g. How Am I Doing Now?
 
diet goals worksheet(.doc) diet goals worksheet(.pdf)
  h. Diet Goals Worksheet
 
initial diet checklist(.doc) initial diet checklist(.pdf)
  i. Initial Diet Checklist
 
assessing food preferences(.doc) assessing food preferences(.pdf)
  j. Assessing Food Preferences
 
Module assessment(.doc) Module Assessment(.pdf)
  k. Module Assessment
 
Cooking experience(.doc) Cooking experience(.pdf)
 l. Cooking Experience

 

Section 6: Other Materials
 
  a. Protocol for Nutritional Support of Maternal PKU (not online: please contact Boston for hard copy)