About the Catecholaminergic Polymorphic Ventricular Tachycardia (CPVT) Family Symposium

Thursday, November 17th, 2016
4:00 PM - 8:30 PM

The Joseph B. Martin Conference Center at Harvard Medical School
77 Avenue Louis Pasteur, Boston, MA

The Inherited Cardiac Arrhythmia Program at The Heart Center at Boston Children’s Hospital invites you to the first-ever Catecholaminergic Polymorphic Ventricular Tachycardia (CPVT) Syndrome Family Symposium, a free event bringing together families and clinical experts to discuss the latest information surrounding this inherited heart arrhythmia condition.

At this conference, families and physicians alike will have the opportunity to:

- Learn what’s new in CPVT research and treatment
- Understand the genetics behind CPVT
- Discover CPVT’s impact on school and sports participation
- Discuss the psychological challenges on diagnosis, loss and lifestyle
- Hear from and meet families with CPVT

Speakers


Dominic Abrams, MD, MRCP
Associate in Cardiology; Director, Inherited Cardiac Arrhythmias Program, Boston Children’s Hospital

Vassilios Bezzerides, MD, PhD
Associate in Cardiology, Cardiac Electrophysiology, Boston Children’s Hospital

Steven A. Lubitz, MD, MPH
Associate in Cardiology, cardiac/heritable arrhythmias, Mass General Hospital

Virginie Beausejour-Ladouceur, MD
Senior Fellow in Cardiology, Inherited heart disease, Boston Children’s Hospital

Shannon Hourigan, PhD, M.S.
Psychologist, Inherited Cardiac Arrhythmia Program Boston Children’s Hospital

Robyn Hylind, M.S.
Genetic Counselor, Inherited Cardiac Arrhythmia Program, Boston Children’s Hospital

Lauren Westgate, RN, CPNP- AC/PC, CCRN
Nurse Practitioner, Inherited Cardiac Arrhythmia Program, Boston Children’s Hospital  

Patient
To be announced

Schedule

4:00 PM - 4:15 PM     Registration 
4:15 PM - 4:35 PM     Molecular mechanisms of CPVT
4:35 PM - 4:55 PM     Investigations, diagnosis and treatment 
4:55 PM - 5:15 PM     Genetics of CPVT 
5:15 PM - 5:45 PM     Psychological issues in CPVT: Dealing with the diagnosis, loss and lifestyle 
5:45 PM - 6:00 PM     Q&A with speakers
6:00 PM - 6:30 PM     Dinner break
6:30 PM - 6:50 PM     New research in CPVT
6:50 PM - 7:10 PM     The patient's perspective: Living with CPVT 
7:10 PM - 7:30 PM     The multidisciplinary approach to care for patients and families with CPVT 
7:10 PM - 7:50 PM     Parallel session: Teenagers break out 
7:30 PM - 7:50 PM     How to talk to schools about CPVT and care plans: AEDs 
7:50 PM - 8:10 PM     Sports exercise in CPVT: What can I do? 
8:10 PM - 8:30 PM     Q&A with speakers 

Registration

Please complete the form below to register your family for the free Catecholaminergic Polymorphic Ventricular Tachycardia (CPVT) Family Symposium: