The Conference Center at Waltham Woods
860 Winter St.
Waltham, MA 02451
Free Parking

Childhood epilepsy can be challenging to manage, but the right resources and support can help. Led by experts at Boston Children’s Hospital and Epilepsy Foundation New England, the Clavin Conference For Family Education In Epilepsy will update you on the latest in epilepsy care such as ketogenic diets, medical marijuana, seizure first aid and more. Please join us on May 6, 2017, for this opportunity to share your experiences and connect with other families.

Agenda

8 - 8:30 a.m. Registration and Breakfast

8:30 a.m. Introductions and Welcome
Phillip L. Pearl, MD, Director of Epilepsy and Clinical Neurophysiology, Boston Children’s Hospital
Mr. and Mrs. John Clavin

8:45 a.m. EEG 101 – What's It All About?
Mark Libenson, MD, EEG Laboratory Medical Director, END Technology Program, Boston Children's Hospital

9:15 a.m. Epilepsy 101 – Seizures and Semantics: A New Lexicon for an Ancient Disease
Phillip L. Pearl, MD, Director of Epilepsy and Clinical Neurophysiology, Boston Children’s Hospital

9:45 a.m. Break

10:15 a.m. New Alphabet Soup for Innovative Epilepsy Treatments: TMS, DBS, RNS
Alexander Rotenberg MD, PhD, Director of the Neuromodulation Program, Boston Children’s Hospital

10:45 a.m. Emergency Treatment for Seizures
Arnold Sansevere, MD, Neurologist, Boston Children’s Hospital

11:15 a.m. Cannabidiol – Medical Marijuana for Epilepsy?
Anne M. Bergin, MD, Neurologist, Boston Children’s Hospital

12:00 p.m. Lunch (provided)

1 – 2:30 p.m. Afternoon Session I - New Onset and Established Treatment Tracks
  •  For the New Onset Family: Seizures, School, and Meds – Cheryl Cahill, RN, Boston Children’s Hospital
  •  For the Established Treatment Track: Ketogenic Diet – Chris Foley RN; Stacey Tarrant, RD, Boston Children’s Hospital
  •  Vagus Nerve Stimulator – Colleen Gagnon, RN, Boston Children’s Hospital

2:30 – 4 p.m. Afternoon II – Seizures and the Caregiver Session
Moderator: Susan Linn, President and CEO, Epilepsy Foundation New England2:30 – 3 p.m. Panel Presentations and Discussion

3 – 4 p.m. Interactive Learning Stations for parents to rotate through:
Advocacy and Education
Youth and Teen Wellness Programs and Opportunities to Connect Resources, Support Services and Community Education

Panel Discussants and Station Leaders:
  •  Bill Murphy, Director of Advocacy and Public Policy, EFNE
  •  Jennifer Jeffs, MSW, Boston Children's Hospital
  •  Chris Ryan, MSW, Boston Children's Hospital
  •  Susan Welby, Director of Community Education and Engagement, EFNE
  •  Chanda Gunn, Youth Programming Specialist, Epilepsy Foundation of America and EFNE
  •  Mary-Beth Landry, Information Specialist, Federation for Children with Special Needs

Register Now

Boston Children's at Waltham

MORE

Questions

Contact Alisa Marino at 617-355-2413

Email

Accomodations

Nearby accommodations

More