Patient Success Stories
Each year, thousands of patients and families from across the United States and beyond travel to Boston Children's Hospital to seek treatment for complex diseases and conditions. All of our patients are unique, but their stories tend to have a lot in common: a serious health problem, doctors and nurses collaborating from half a world away, the remarkable determination of children and families -- and a happy ending.
Here are some of our most memorable recent success stories:
Craniosynostosis turns a Costa Rican family into football fans
When Marcel was diagnosed with craniosynostosis as a baby, his parents decided to have him treated far from home at Boston Children’s Hospital. After surgery and a year of wearing a helmet, Marcel is thriving.
From Bahrain to Boston for very early onset IBD care
Gassen Boabed from Bahrain had little-to-no appetite, was slow to gain weight and had painful bowel movements and diarrhea. Gassen's parents packed up their family and traveled 6,400 miles from their homeland to Boston Children's. Today, with the help of Boston Children's Inflammatory Bowel Disease Center, Gassen is back on track and continues to thrive.
Solving a Newborn's Rare Bladder Problem
A boy is born in Greece with bladder exstrophy, a rare urological condition that affects roughly 1 in every 40,000 babies. Deeply concerned, his parents consult experts in their home country and opt to seek care at Boston Children's Hospital, which handles up to six such cases each year in its specialized bladder exstrophy program.
Mexican teen battles metastatic liver cancer with his family by his side
Three years ago, Manuel Sanchez Paniagua was diagnosed with an aggressive liver cancer that would end up spreading to other areas of his body, including his brain. Manuel left his home in Mexico City to battle this rare metastatic cancer at Dana-Farber/Boston Children's.
'Because of This, I Am Stronger'
An extremely rare vascular malformation leaves a 13-year-old girl from Kuwait in extreme pain. Thanks to surgery at Boston Children's Hospital -- and her courageous dedication to physical therapy -- Minwa Alhamad is now enjoying life and exploring her talents as an artist.
A Bone Marrow Transplant - Times Two
Twin girls in Colombia with a rare genetic syndrome travel to Boston with their parents for a bone marrow transplant -- and the opportunity to participate in a clinical trial for an experimental process that seeks to make transplants safer and more effective.
Helping Hands Across Borders
When a small boy from the West Bank is diagnosed with a congenital condition that compromises the kidneys and urological system, a team of Israeli doctors and U.S. benefactors join together to secure him a kidney transplant.
From Mexico to Boston to Fix Regina's Heart
When Regina was born in Mexico with Hypoplastic Left Heart Syndrome, the Torreblancas traveled to Boston to give their daughter a chance at life. Three surgeries and nineteen months later, Regina was back in Cancun – healthy and happy!
Annabel’s journey: The story behind the movie “Miracles from Heaven”
Christy couldn't find answers for her daughter Annabel's debilitating GI condition in their home state of Texas. The family traveled to Boston Children's Hospital, where Dr. Samuel Nurko - a native of Mexico - helped get Annabel's condition under control.
Pioneering Surgery Helps Boy with Sickle Cell Disease Protect his Brain
When Calvin suffered a stroke due to his sickle cell disease and Moyamoya disease, his family traveled from Bermuda to Boston for their son to undergo a pioneering surgery to protect his brain. With the help of the team of experts at Dana-Farber/Boston Children's, Calvin is back at home and thriving.
Born with "bubble boy" disease, boy thrives after gene therapy
Agustin was born in Buenos Aires, Argentina with SCID-X1 or "bubble boy disease." Participating in a gene therapy trial at Dana-Farber/Boston Children's gave Agustin a chance at life.