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Sturge-Weber Syndrome in Children

  • If your child has Sturge-Weber syndrome, it means that she was born with a vascular birthmark and neurological abnormalities.

    • Seizures develop in 75 to 90 percent of all children with the syndrome. The seizures often start before a child reaches age 1 and may worsen as she gets older.

    • About one-third of children with the syndrome have congenital (present at birth) glaucoma on the side with what’s called a port wine stain.

    • The total number of people with SWS is not known, but estimates range from one in 40,000 to one in 400,000.

    How Boston Children’s Hospital approaches Sturge-Weber syndrome

    The Sturge-Weber Syndrome Clinic at Children's is a national leader in the care of children with Sturge-Weber syndrome, providing comprehensive evaluation and treatment services to children from birth to adulthood. Our team includes specialists in the fields of:

    We also work closely with your child's pediatrician to ensure that she receives individually tailored care that meets all of her needs.

Request an Appointment

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Send RequestIf you do not see the specialty you are looking for, please call us at: 617-355-6000.International visitors should call International Health Services at +1-617-355-5209.
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This department is currently not accepting appointment requests online. Please call us at: 617-355-6000. International +1-617-355-6000.

This department is currently not accepting appointment requests online. Please call us at: 617-355-6000. International +1-617-355-6000.

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Contact the Sturge-Weber Syndrome Clinic

  • 1-617-355-8994

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