If your child has Sturge-Weber syndrome, it means that she was born with a vascular birthmark and neurological abnormalities.
Seizures develop in 75 to 90 percent of all children with the syndrome. The seizures often start before a child reaches age 1 and may worsen as she gets older.
About one-third of children with the syndrome have congenital (present at birth) glaucoma on the side with what’s called a port wine stain.
The total number of people with SWS is not known, but estimates range from one in 40,000 to one in 400,000.
How Boston Children’s Hospital approaches Sturge-Weber syndrome
The Sturge-Weber Syndrome Clinic at Children's is a national leader in the care of children with Sturge-Weber syndrome, providing comprehensive evaluation and treatment services to children from birth to adulthood. Our team includes specialists in the fields of:
We also work closely with your child's pediatrician to ensure that she receives individually tailored care that meets all of her needs.