While a diagnosis of synovial chondromatosis can be alarming, you can rest assured that this is a very treatable condition and the vast majority of children are cured with one or more surgeries.
Your child's physician will determine a specific course of treatment based on several factors, including:
- your child's age, overall health and medical history
- the location of the affected joint
- the risk of damage to the joint
- whether the disease has recurred
Traditional treatments for synovial chondromatosis
Should your child need surgery to remove the abnormal tissue, the typical treatment is an operation called a synovectomy, in which the loose bodies of cartilage are removed. The condition may recur as the synovial lining re-grows, and if it does, your child may need a second surgery.
Your child may need physical therapy after surgery to preserve normal functioning of the affected joint.
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Coping and support
When your child has a condition like synovial chondromatosis, your family is dealing with many different concerns and worries. Not only are you focused on meeting all of your child's medical needs; you are also grappling with a significant emotional and psychological toll.
In addition to the clinical information offered on this page, Children's has several other resources designed to give your family comfort, support and guidance.
Children's Center for Families is dedicated to helping families locate the information and resources they need to better understand their child's particular condition and take part in their care. All patients, families and health professionals are welcome to use the Center's services at no extra cost. The center is open Monday through Friday from 8 a.m. to 7 p.m., and on Saturdays from 9 a.m. to 1 p.m. Please call 617-355-6279 for more information.?
The hospital's Complex Care Services provides care for children with complex medical conditions in both inpatient and outpatient settings. CCS partners with the child's family, primary care physician and treatment team specialists to ensure comprehensive, coordinated and centralized medical care. Please call 617-355-6162 for more information.?
Children's Behavioral Medicine Clinic homepage helps children who are being treated on an outpatient basis at the hospital—as well as their families—understand and cope with their feelings about:
- being sick
- facing uncomfortable procedures
- handling pain
- taking medication
- preparing for surgery
- changes in friendships and family relationships
- managing school while dealing with an illness
Call 617-355-6688 to learn more. ?
The Experience Journal was designed by Children's psychiatrist-in-chief, David DeMaso, MD, and members of his team. This online collection features thoughts, reflections and advice from kids and caregivers about living with a variety of medical conditions, the “befores” and “afters” of surgery and going through many other medical experiences.?
Children's Psychiatry Consultation Service provides several services, including:
- short-term therapy for children admitted to one of the hospital's inpatient units
- parent and sibling consultations
- teaching healthy coping skills for the whole family
- educating members of the medical treatment team about the relationship between physical illness and psychological distress
The Psychiatry Consultation Service works with children who have been admitted to the hospital—and their family members—and operates on a referral basis. If you are interested in setting up an appointment, please speak to your child's treating clinician.
The Children's chaplaincy is a source of spiritual support for parents and family members. Our program includes nearly a dozen clergy members—representing Episcopal, Jewish, Lutheran, Muslim, Roman Catholic, Unitarian and United Church of Christ traditions—who will listen to you, pray with you and help you observe your own faith practices during your child's treatment.
Children's International Center is a resource for patients and families from countries outside the United States. The center can provide assistance with everything from reviewing medical records to setting up appointments and locating lodging. Contact the center by phone at 01-617-355-5209 or via e-mail at email@example.com.
On our For Patients and Families site, you can read all you need to know about:
- getting to Children's
- navigating the hospital experience
- resources that are available for your family
| Create a Carepage
| Keep family and friends up to date during your child's treatment by creating a free Children's Carepage
| Visit our Integrative Therapies Team
Find out about their services for hospitalized children, their families and their caregivers, including: