Klippel-Trenaunay syndrome (KTS) is a rare congenital (present at birth) vascular anomaly that results in your child having a large number of abnormal blood vessels.
- No one knows the precise cause.
- Klippel-Trenaunay syndrome is a complicated condition, and it affects different kids in different ways.
- The first step is to have your child evaluated by members of an experienced interdisciplinary vascular anomalies team.
- No single specialist can manage KTS and its associated problems, as different interventional techniques and surgical procedures are often needed.
- Because there is no cure for KTS—and it’s a progressive condition—we believe that treating your child’s Klippel-Trenaunay syndrome symptoms is the most effective way to manage the disease.
How Boston Children's Hospital approaches Klippel-Trenaunay syndrome
The Vascular Anomalies Center (VAC) at Boston Children's specializes in innovative, family-centered care for children with KTS. From your first visit, you’ll work with a team of professionals who are committed to supporting all your family’s physical and psychosocial needs.
Children with KTS sometimes have legs that are so large as to be debilitating, forcing them to use a wheelchair. Surgeons at Boston Children's are leading the charge in removing the extra tissue that grows as a result of KTS. In what's called a debulking procedure, our surgeons remove a great deal of the extra tissue, which can allow your child to regain function of her leg. Read more about our treatment.