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Send RequestIf you do not see the specialty you are looking for, please call us at: 617-355-6000.International visitors should call International Health Services at +1-617-355-5209.
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This department is currently not accepting appointment requests online. Please call us at: 617-355-6000. International +1-617-355-6000.

This department is currently not accepting appointment requests online. Please call us at: 617-355-6000. International +1-617-355-6000.

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Contact the Craniofacial Anomalies Program

  • 1-617-355-6309

Encephaloceles in Children

  • Encephaloceles are rare neural tube defects where brain membranes protrude through openings in the skull.

    • Encephaloceles cause a groove down the middle of the skull, between the forehead and nose or on the back of the skull.
    • The severity of encephalocele varies, depending on its location.

    How Children’s approaches encephaloceles

    The Advanced Fetal Care Center of Boston Children's Hospital supports the needs of your family at every step of care for encephaloceles, from diagnosis and counseling through treatment and follow-up. The Center's groundbreaking work has significantly improved outcomes for babies with this condition, while delivering hope and compassionate care to families along the way.

    A patient’s story: Domic's Amazing Transformation

    A patient’s story: From Haiti to Boston

    Dumanel"The whole area around the eyes, nose and forehead was reconstructed fairly dramatically… He had two very complex issues, and given that, he's done remarkably well."  --John Meara, MD, DMD, MBA, about surgery on a patient with an encephalocele.

The future of pediatrics will be forged by thinking differently, breaking paradigms and joining together in a shared vision of tackling the toughest challenges before us.”
- Sandra L. Fenwick, President and CEO