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Desmoid Tumor in Children

  • A Desmoid tumor develops in the fibrous tissue that forms tendons and ligaments.

    • most often it occurs in the arms, legs or midsection
    • it can also occur in the head and neck
    • desmoid tumor is also called "aggressive fibromatosis"
    • is benign and does not spread to other parts of the body
    • can adhere to and intertwine with surrounding structures and organs, which makes it difficult to control

    Research on Desmoid tumors

    Dana-Farber/Boston Children’s Cancer and Blood Disorders Center researchers are conducting numerous research studies that will help clinicians better understand and treat Desmoid tumors. Types of treatment currently being studied include:

    • Angiogenesis inhibitors - These substances may be able to prevent the growth of tumors by blocking the formation of new blood vessels that feed the tumors.
    • Chemotherapy agents - Researchers are testing which chemotherapy drugs, or combination of drugs, are most effective in treating Desmoid tumors.
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